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Newsletter Archive for November 2003

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November 4, 2003 Edition, PABIA-NEWS

November 20, 2003 Edition, PABIA-NEWS

 

 

 

 

 

 

 

 

 


PABIA NEWS  Support Lines
Visit us on the web at http://www.pabia.org/
Feel free to forward this message to anyone you believe might be interested.

Beyond Survivor

High Five-Barrier Free

 

 

 

 

 

Barrier Free


Inside:

  • Cognitive Dissonance-John Pistorius
  • PABIA Volunteering/Employment Meeting Success
  • Talk Back Mail Bag-More Feedback about the Terri Schiavo Issue
  • 19 National Disability Groups Issue Statement in Support of Terri Schiavo -Press Release, Oct. 29, 2003
  • Quotable Quotes
  • Auto NEWS-10 Hottest Safety and Convenience Technologies
  • Web Links-Advocacy
  • Pittsburgh Area Brain Injury Alliance Meeting Notice
  • Internships for College Students, Spring and Summer 2004
  • Thank You! to: Ann Ciotoli and Stephanie John
  • Subscribe/Unsubscribe instructions
  • Copyright notice
Today is . . . Sadie Hawkins Day
On this date . . . Will Rogers was born in Oklahoma (1879)
 
Did you vote?

PABIA-NEWS Subscriber Policy: We value every subscriber and respect your privacy. Our subscriber list is NOT made available to anyone for any reason.  You may unsubscribe at any time by following the instructions provided at the end of this message. We don’t want to send this to anyone who doesn’t wish to receive it, and we will make every good faith effort to remove you if you notify us of your intent to be removed.
 

Cognitive Dissonance
by John Pistorius
 
Our mind is troubled by the disharmony that occurs when our current belief or outlook on anything is challenged. This confrontation occurs by something visible or evident that gives us grounds for believing the existence or presence of something else. Our mental acceptance of the truth or actuality of something gives it a form of ‘absoluteness’ to us. We become absolutely certain in the trustworthiness of the idea, thought or concept. This becomes an opinion or our view on that particular idea, thought or subject. Often we hold onto our convictions without any difficulty. Other times, new evidence emerges that boldly confronts our beliefs.

Psychologists use the term "cognitive dissonance" to describe the bothered state of disagreement, sometimes pained state of mind that occurs when new evidence contradicts a current belief or outlook. When such dissonance occurs, either discarding the belief or discarding the new evidence must occur to resolve the conflict.

Examples

An easy example of when cognitive dissonance occurs is when the weather forecast calls for one type of weather, but when you step outside, the weather appears to be opposite of that which was forecast. If the weather person calls for sunshine and cloudless skies, you might dress for your day with the belief that dressing lightly without a jacket or coat is acceptable. If you never step outside, you could comfortably hold onto your belief in the forecast without it being challenged. However, when you step outside and see clouds, feel rain and chilled air, you are boldly confronted with facts that clash with your belief in the forecast. Do you discard the new evidence or your belief? Whichever choice you make, it affects YOU first. Your choice eventually affects others too.

If you choose to ignore the facts which are before you, the current reality of cold and rain can be unfavorable to your manner of dress. In the short term, you may only get a bit chilled and wet. However, if you are exposed to the elements without proper dress for an extended period of time, your immune system can be affected, compromising your health. Your health can affect others. Therefore, discarding the belief you hold in the weather forecast and adhering to the newly presented evidence can be beneficial to you and other people. The warmth of a jacket or coat can be like the love of a friend on a cold day.

Sometimes, as in my example of the weather forecast, our beliefs are instilled in us by other people. As children, we are most affected by those who are responsible for us. Our parents, teachers and others in authority instill in us beliefs that closely model their own. As we mature, we face evidence which either supports or opposes beliefs which have been planted in us by others. Through this process, we form our own opinions and beliefs. These are the beliefs that we firmly hold onto. Therefore, we are less willing to give them away or trade them for others.

Another example of cognitive dissonance occurs in relationship to prejudices. As children, we may be told that ‘all’ boys or ‘all’ girls are ‘blah, blah, blah.’ Whatever the ‘blah, blah, blah’ stands for, it is an ‘absolute,’ all-inclusive statement. It leaves no room for a different opinion or idea to be included because of the ‘all’ modifier. However, as we mature, we unravel those previous beliefs and form new opinions based on our personal interactions.

Race Relations

This same ‘absolute’ opinion development occurs within the context of race. Take a moment to ‘hear’ your first mental response to the following words and phrases:

  • White man
  • Black man
  • Asian
  • Black woman
  • White woman
  • Native American
Now examine your automatic responses to the following words:
  • sex
  • love
  • intimacy
  • money
  • prestige
  • power
  • control
  • poor
  • rich

Do your automatic responses to those words match what you think you believe? Are your thoughts positive or negative?

Disability examples

Now, take a look at the following words and note your first thoughts regarding them:

  • disability
  • brain injury
  • cognitive impairment
  • speech impediments
  • memory deficits
The thoughts that you possess regarding these words are tied to your beliefs. Regardless of what you may tell yourself, if your belief contradicts the evidence before you, you must make a choice. No matter what you choose, your choice affects YOU, and others.Malin Lowenadler-Shadel
Many people are unwilling to discard beliefs that they have become comfortable with. For example, a person might work with others who are injured and experiencing severe cognitive impairments. In their role they might not be privileged to witness the sometimes miraculous recovery that takes place outside of the setting where they work. The person working in this limited situation can be led to believe that ‘all’ persons who have cognitive impairments are the ‘same.’ That is, that they only reach a certain level of recovery. This belief might be comfortable in their work setting because for the most part, it could hold true. However, outside, in the real world, the belief does not hold true.

Most people do not work within medical or rehabilitation companies. Therefore, their opinions are founded on information received through experiences in real life and media exposure. Each person’s individuality separates them from inclusion into ‘absolute’ categories of recovery or functionality. When faced, this reality can cause the state of disharmony of cognitive dissonance.

When presented with new evidence about what it means to be disabled or impaired or injured, we must make a choice. Not all people who sustain Brain Injury survive. Not all people who survive Brain Injury remain comatose. Many people regain consciousness after Brain Injury. Not all people who become responsive after Brain Injury live the rest of their life in a bed or a chair. The list of ‘not all’ goes on and on.

Recovery happens

To be sure, Brain Injury complicates life for the people who experience it. Sadly, some people do not fully recover from Brain Injury. However, many people who sustain and survive TBI overcome barriers well enough to lead satisfying, productive lives in society. And that can shift a paradigm or two if you meet these folks who do not believe that they must remain in a reduced state of cognition. Regardless of evidence to the contrary, many people continue to hold onto their incorrect beliefs in the forecasters who predict certain outcomes are absolutely inevitable. They are the ones who are left out in the cold without the love and warmth that the jacket of acceptance can bring.

Language Patterns

Our language affects our beliefs. It is one way that we can change the prevailing beliefs in society at large. To change ‘absolute’ thought patterns, one only needs to change the way that they refer to people. By refusing to hold on to ‘absolute’ thinking patterns, the belief that ‘all’ people who sustain Brain Injury are the same and therefore will always be similar can be undone.

If we take a brief look at the history of race relations in this country, we will see a marked change in language as one of the most powerful examples of shifting beliefs. We can all remember words that were once accepted in reference to people whose skin is darker than others. Those words are no longer employed in media and society at large because of the demeaning nature of the ‘thoughts’ they produce when used. The same thing holds true within the disability community.

Time for action

It is time to stand up for what is right and to decry the use of demeaning language in reference to people with disabilities. By insisting upon the removal and disassembly of language barriers, we can cause some cognitive dissonance within society, the media, government and each other. The disharmony that becomes reality in the minds of people will lead some to accept the truth. People with disabilities are not worth less than others who have yet to experience disability. A ‘non responsive’ prognosis does not eliminate a person from belonging to the human race. A coma does not shift us from human to vegetable status. Brain Injury is not the end of life. It is the beginning of life after brain injury.

Eliminating language barriers will free more people with disabilities to enjoy the freedoms and rights guaranteed to them by the Constitution of this great nation. And isn’t that what is right for everyone?


PABIA Volunteering/Employment Meeting Success
November 4, 2003
 
Our appreciation and gratitude is extended to the people who volunteered their time to present information to our meeting participants tonight.  Thank you folks.
 
Dr. Dennis Pad, Independent Employment Consultant started the meeting with powerful information about how people can present themselves positively for employment.  Robin Page of the United Way briefly described some benefits to people who volunteer their time in service to others. Andy St. John, Unit Leader, Supported Employment, of Life's Work outlined keys concepts important to successful employment for people with disabilities. Megan Frezy of Working Order, presented a synopsis of services available to persons interested in becoming employed and Lynn Ireland-Knight and Alyssa Brenneman, AHEDD presented information about the 'Ticket to Work' Incentives Improvement Act and functional workplace accommodations for people with disabilities.
 
 We have asked each of the presenters to revisit us individually to insure adequate time for them to present a full description of their aspect of working or volunteering services available in our area.
 
Thanks to Mr. Ed Crinnion, we ate generous portions of Prime Rib, Halibut, Snow Crab Legs, Lobster, and our choice of sides.  Well, not really, we had the standard soda pop and chips, but we can dream big, right?
 
Please see our meeting notice within this issue for date and time of our next meeting.
 

 


Talk Back-Mail Bag
Commentary and Feedback on the Terri Schiavo Human Rights Case
(For more information regarding Terri Schindler-Schiavo, visit http://www.terrisfight.org/lead.htm)
 
 
The fight over Terri Schiavo has been portrayed as a 'Right to Life' and 'Right to Die' issue.  However, it is much more than that.  It is a human rights issue that gnaws at the civil rights of Terri Schiavo and indeed, every other person alive in America today.  Terri is a living human being.  As such she has rights which are guaranteed to her by the Constitution of this great nation.  Nevertheless, because she is unable to articulate her desires, needs, wants and wishes, her husband has her life in his hands.
 
The media reports of a husband seeking relief for his wife would seem reasonable.  However, no mention has been made of the fact that he is living with another woman and has sired two children by her.  Nor is the settlement money being widely reported.  This husband is an estranged husband.  As such, his motives must be taken into account.
 
On October 29, 2003, nineteen national disability groups signed a joint statement in support of Terri Schindler-Schiavo (please see accompanying story below.)  This coalition of organizations is long overdue in relationship to rallying support for Brain Injury issues.  We are not separate from the rest of the disability community, yet somehow, our plight, which undoubtedly affects everyone else, has continued to be largely ignored. Let us stand united.
 
This issue affects every person experiencing disability too.  If Terri is left to die, which group will be next to be starved to death?  Might we return to the dark ages and 'cull' the children who are born with disabilities?  Might we 'off' our aging parent's to alleviate their suffering and expedite the transfer of wealth?  Maybe we are just an accident settlement away from the discontinuation of life sustaining supports.
 
Hey, if Terri's husband is successful, she dies, he walks off with a new mate and a huge bankroll.  What better reasons to end her 'suffering', right?  Maybe his new wife will find herself facing the same kind of tender loving care in the future.  Accidents happen.  So does coma.  So do large insurance settlements.  If Terri is killed, other people will be facing the same blatant violation of their civil rights.  And you could be next.-John Pistorius
 
 

19 National Disability Groups Issue Joint Statement in Support of Terri Schiavo

Press Release, Oct. 29, 2003

 

Washington, DC-If Terri Schindler-Schiavo's feeding tube is removed, she will have been killed because she is not being given the Constitutional protections the rest of us enjoy, say nineteen disability rights organizations in a statement released yesterday. 

      "Treating people differently based on health or disability status violates the rights of people with disabilities under the Americans with Disabilities Act, as well as the rights that all people should be assured by the U.S. Constitution" said Jim Ward, President of ADAWatch, a Washington-based group, which protects the civil rights of people with disabilities.  With no clear and convincing proof, such as a signed advance directive, withholding care based on the belief that a person would want to die because of disability is discriminatory, and violates Constitutional protections as well.

      The "right to life" movement has embraced her cause to prove "sanctity of life."  The "right to die" movement believes she is too disabled to live, better off dead.  Yet the life-and-death issues surrounding Terri Schindler-Schiavo are actually disability rights issues-issues that affect millions of Americans old and young.  Can she think?  Hear?  Communicate?  These questions apply to thousands of people who cannot currently articulate their views and so must rely on others as substitute decision-makers.

      In this matter of living as a disabled person, those of us who live with a disability are the experts-not husbands, not parents, not doctors, not ethicists.  We know that life with a disability is worth living, and we know something we find appalling is the attitude of "better off dead "-an opinion that drives much of the thinking surrounding people like Terri Schindler-Schiavo.

      Are some deaths more rational than others?  Don't incompetent ill and disabled people deserve the same type of care that "competent" people get?  Denying people like Schindler-Schiavo the care and support they need to live, say groups signed onto the joint statement, violates their civil and Constitutional rights. View joint statement at:

 

http://www.raggededgemagazine.com/schiavostatement.html 

 

 
Quotable Quotes
 
Too often we underestimate the power of  touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around. -Leo Buscaglia, American  Lecturer, Author

Forget about the consequences of failure.  Failure is only a temporary change in direction to set you straight for your next success. -Denis Waitley, American Author, Speaker
 
Prepare Your Mind - your mind is like a garden. You can either grow beautiful flowers or weeds. Either will grow just fine. If you prepare your mind, plant good seed, fertilize and water, weed your garden regularly, and then harvest at the right time, whatever goes into your mind will dictate what comes back out.-Rod Nichols
 

Auto NEWS
10 Hottest Safety and Convenience Technologies
When it comes to developing amazing automotive technologies, the industry is on over-drive. Electronics are set to supplant most mechanical systems, and even midrange car models are about to come loaded with sensors, cameras, computer screens and Wi-Fi hookups. In short, a new automotive era is fast approaching. Says John Heywood, director of the Sloan Automotive Laboratory at the Massachusetts Institute of Technology, "I've been involved (with auto research) for more than 30 years, and there's more action and more promise for improvement now than I've ever seen." Here's what to expect within the next decade:

Passive no more. Active safety systems will overtake passive protection, such as airbags. These advanced systems will utilize radar and cameras to detect potential dangers. "We've put airbags just about every place you can," says John Weiner, a U.S. product-planning manager at Toyota. "Within the next five years, the car will use algorithms to anticipate hazards and intervene or warn the driver."

Who needs car keys? The credit-card-like systems already found in some Cadillacs, Infinitis and BMWs will make their way to all new cars, banishing keys to obsolescence. In fact, keyless entry is slated to appear on some 40 different cars over the next three years, says Michael Gautier, North American director of corporate technology for Siemens VDO Automotive, the auto components and systems unit of the German electronics heavyweight Siemens.

Video age. Every new car will feature a computer-monitor-like screen built into the dashboard. Using a navigation system that relies on a global positioning satellite and on-board DVDs, the video screen will display directions, maps and information on hotels, hospitals and restaurants. Additionally, the screen "will show you certain features within the car and connect to other devices such as PDAs and cell phones," says Thilo Koslowski, California-based lead vice- president in the automotive group for business advisory firm Gartner G2.

Hooked up. Nearly every car will have a Wi-Fi connection that automatically conveys information such as the weather, news and sports scores. "We're going to see hot spots in places like gas stations and restaurants," forecasts Peter Wengert, a marketing manager for automotive products at Microsoft, which is promoting Windows Automotive as a software standard for managing such new car communications capabilities.

Information, please. A growing number of cars will be able to collect information that can be exchanged with dealers, manufacturers and even other vehicles. For example, dealers or manufacturers may be able to perform remote diagnostics to assist individuals whose vehicles break down on the road.

Many more eyes. Within 15 years, the standard vehicle will be loaded with 10 to 15 cameras to help parents watch their kids and to make it easier for drivers to manage blind spots, Siemens' Gautier says. Many vehicles will come equipped with cameras in their front bumper so drivers can "look" around corners as they turn out of driveways or alleys.

Going 40. Cars using 40-volt electrical systems will become the norm because current 12-volt systems can't readily support all the new electronic gadgets.

Do this, do that. Voice command systems, which are already offered in some BMWs, Jaguars and Lexuses, will become much more widely available to assist drivers in managing the growing number of functions in their cars.

Pedals become electronic. Also speeding into widespread production are brake-by-wire and accelerate-by-wire systems, in which stepping on the pedal transmits an electronic signal instead of triggering a physical link to the brakes or engine. All Mercedes models have featured electronic brake pedals since 1994, and the Chevy Corvette and all of the latest Audis already employ accelerate-by- wire. Electronic switches now found in many luxury cars will supplant emergency brake handles. And steering-by-wire may come next.

Programmable options abound. More and more features in a car will become programmable. "We have a vision that you can use electronics to let you choose what kind of vehicle you want to drive," says Chris Gerdes, a professor of mechanical engineering at Stanford University. "You can have it be sporty or luxurious, as you choose." While that may still be years away, the new Audi A8 already lets each driver adjust road clearance to modify the car's "ride." By 2010, most new cars will feature a reconfigurable speedometer and other displays in which drivers can adjust the type size, predicts Ron Miller, project leader for Intelligent Vehicle Technologies at Ford.

While many new car technologies are already here or fast approaching, there's one innovation that still remains in the distant future, self-driving cars. "Fully automated driving is one of those things that since the 1940s has always been 15 years in the future," says Gerdes from Stanford. "We never seem to get there." Fortunately, there are many other impressive innovations that are revving up or are already starting to transform the driving experience.

Source:
21st Century Cars Hit the Road
Thane Peterson
Business Week, Sept. 4, 2003


Web Links
Research Sites

Pittsburgh Area Brain Injury Alliance
December Meeting Notice
 

Next PABIA MEETING DATE:  Tuesday, December 2, 2003

TIME:  7:00 P.M.

TOPIC: To be announced soon.

PLACE: 1323 Forbes Avenue, Pittsburgh Near Mercy Hospital and AJ Palumbo Center

ADMISSION: Free

PARKING: Free Parking Lot adjacent to the building

Contact:  Ed Crinnion at 412.761.9870

Refreshments provided.

 

Internships for College Students
 
  • SPRING AND FALL 2004 Internship Opportunities for College
    Students with Disabilities


    With sponsorship from the Office of Disability Employment
    Policy (ODEP) of the U.S. Department of Labor, The
    Washington Center for Internships and Academic Seminars
    (TIC) has created a new internship program which seeks to
    recruit qualified college students with disabilities to
    intern in the executive, legislative, or judicial branches
    of the federal government. A total of fifty (50) students
    will be selected to participate in this program in 2004.
    The American Association of People with Disabilities (AID)
    will offer technical guidance and support to implement this
    one-of-a-kind initiative.

    Tuition scholarships are available, and students will
    receive academic credit while gaining valuable work
    experience in Washington, DC.

    For additional information and applications, please visit
    www.twc.edu or www.aapd-dc.org.  Or contact Jennifer
    Clinton at The Washington Center by email at
    jenniferc@twc.edu or call 202-336-7569 (voice).

    The application deadline for the Spring 2004 semester is
    Friday, NOVEMBER 15, 2003.

    Please help us spread the word to all interested
    individuals.

    Thank you!

    Ollie Cantos, General Counsel & Director of Programs
    (generalcnsl@aol.com)
    Marie Campos, Policy & Program Associate (aapd@aol.com)
    American Association of People with Disabilities (AID)
    Tel: 202-457-0046 or 1-800-840-8844 (vs./tty)
    Fax: 202-457-0473
    Website: www.aapd-dc.org
     
The American Association of People with Disabilities (AAPD)
is pleased to announce two summer internship programs for
college students with disabilities for 2004.
 
  • CONGRESSIONAL INTERNSHIP PROGRAM FOR COLLEGE
    STUDENTS WITH DISABILITIES, Summer, 2004


    Administered by AAPD and sponsored by the Mitsubishi
    Electric America Foundation (MEAF), second-semester
    sophomores through first-semester seniors interested in
    working on Capitol Hill are encouraged to apply.  Accepted
    candidates will work in congressional offices in
    Washington, DC. Roundtrip air travel and housing will be
    provided to interns, and each student will receive a
    stipend of $1,500.

         APPLICATION DEADLINE:  DECEMBER 15, 2003.

         For additional information and an application, visit:
        
    www.aapd-dc.org.
 
  • INFORMATION TECHNOLOGY INTERNSHIP FOR COLLEGE
    STUDENTS WITH DISABILITIES, Summer, 2004

     
    Administered by AAPD and sponsored by Microsoft
    corporation, undergraduate students interested in pursuing
    a career in information technology are encouraged to
    apply.  Accepted candidates will work in various agencies
    in the executive branch of the federal government. 
    Roundtrip air travel and housing will be provided to
    interns, and each student will receive a stipend
    of $4,500.

         APPLICATION DEADLINE:  DECEMBER 15, 2003.

         For additional information and an application, visit:
        
    www.aapd-dc.org.

    CONTACT:
    Ollie Cantos, General Counsel & Director of Programs
    (email:
    generalcnsl@aol.com)
    Marie Campos, Policy & Program Associate
    (email:
    aapd@aol.com)
    American Association of People with Disabilities (AAPD)
    Tel: 202-457-0046 or 1-800-840-8844 (v/tty)
    Fax: 202-457-0473
    Website:
    www.aapd-dc.org
     

THANK YOU!
 
A warm thank to is extended to Ann Ciotoli and Stephanie John of HealthSouth for helping us update our media contact list.  We use this list to inform the media of upcoming meetings, special events and issues of importance to our members and friends. 
 
Ms. John has spent countless hours developing her media contact list, and her generosity is greatly appreciated.  We have agreed to keep this information confidential and to use it solely for our peer group development purposes only.
 
Anyone interested in assisting us in further contact updates or additions can contact Malin Lowenadler-Shadel at malin@pabia.org.

 

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Copyright notice
 
"PABIA-NEWS" may be copied and re-transmitted by electronic mail, and individual copies of a particular "PABIA-NEWS" may be printed, provided that such copying, re-transmission, printing, or other use is not for profit.

Any copying, re-transmission, distribution, printing, or other use of "PABIA-NEWS" must set forth the following credit line, in full, at the conclusion of the portion of "PABIA-NEWS" that is used:
 
Copyright(c) 2003
John Pistorius for Pittsburgh Area Brain Injury Alliance (PABIA).
Reprinted with permission.
 
We may withdraw or modify this grant of permission at any time http://www.pabia.org
 
 


 

'till next time-Seek to be and remain Barrier-Free.

 

 

 

 

PABIA NEWS  Support Lines
Visit us on the web at http://www.pabia.org/
Feel free to forward this message to anyone you believe might be interested.

Beyond Survivor

High Five-Barrier Free

 

 

 

 

 

Barrier Free


Inside:

  • Editor's Note
  • Talk Back Mail Bag
  • Quotable Quotes
  • Parsley, Sage, Rosemary . . .
  • Facts
  • Research Study Idea
  • Web Links-Coma Stimulation, Brain Boosters
  • Pittsburgh Area Brain Injury Alliance Meeting Notices
  • News Article-Disabled Rally Around Terri Schiavo
  • Subscribe/Unsubscribe instructions
  • Copyright notice

PABIA-NEWS Subscriber Policy: We value every subscriber and respect your privacy. Our subscriber list is NOT made available to anyone for any reason.  You may unsubscribe at any time by following the instructions provided at the end of this message. We don’t want to send this to anyone who doesn’t wish to receive it, and we will make every good faith effort to remove you if you notify us of your intent to be removed.
 

Editor's Note
 
Hello Folks,
 
After the last edition of this Newsletter, I received several comments about the 'Cognitive Dissonance' article. I'm sorry that I have not responded to the requests for a follow-up to that piece yet. I have additional information which will be published as soon as I am able to straighten out my email difficulties.
 
My email server is not permitting me to receive mail and I'm not really sure that this message will even be delivered. Anyone interested in reaching me by email can send mail to me at johntheone@netzero.com where I'm sure to receive it.
 
Thank you to those who have contacted me regarding the PABIA-NEWS. We currently have almost 500 subscribers, some from as far away as Australia and New Zealand. Many are residents of the State of Pennsylvania and indeed, the City of Pittsburgh. This is a volunteer effort, so I encourage our readers to submit articles, information, web links and ideas for future issues. You are welcome to comment on the content of this electronic newsletter too. Constructive criticism is welcome and will be considered valid if you include a return email address.
 
It is my pleasure to continue to seek and find what I believe to be valuable content for this publication. It is my sincere hope that you find the information compiled here to be enlightening, informative and stimulating.
 
Respectfully yours,
John Pistorius
 

Talk Back Mail Bag
 
Dear John,
 
I was re-reading this issue (September 11, 2003) again .... it is truly excellent. The section on Survivors Recovering, I have copied the text out in the body of this e-mail and I have added some comments in purple lettering. I have also added my 'Brain Injury Survivor Wisdom' which has on pages 31-38 the wisdom from your website www.pabia.org Use this file however you like with appropriate references to www.brain-injury-survivors.org. We here Queensland, Australia area are  long way behind in brain injury support services which you have in the United States. We have only a draft ABI Plan in place at the moment since early  2002 .....still made official. (We call it Acquired Brain Injury here and not TBI as I often read from writings from the USA). Local Statewide Brain Injury Associations are not well funded by the Government. .... see Brain Injury Association of Queensland: http://www.biaq.com.auFor me as a single brain injury survivor to be doing what I am doing from where I have come from is very rare and unusual. I love what you are doing as well for brain injury survivors. I just wanted to encourage you in what you are doing on the other side of the world from me.-Ken Aitken
 
* * * *
 
John-
 
Well done (Cognitive Dissonance) article in your (November 4, 2003) PABIA Newsletter.
 
I found your word lists encouraged reader involvement - self informative. Odd how hard it can be to shake background beliefs. Takes a lot of conscious effort to see beyond our own hidden internal barriers. Yet every day we want others to do this for us.
 
Thank you for sharing. It has left me starting my day thinking. This is always a good exercise.
 
Anita Dehghani,
California, USA
ABI News 2-U
 
 

 
 
Formerly in a coma, now Ed Crinnion coordinates peer group meetings in Pittsburgh.Quotable Quotes
 
I thought of the care being provided to the comatose patients we had seen and asked myself "How much was being done to stimulate the injured brain of each of the unconscious patients." The answer was the same in every case Not Enough!-Robert J. Doman, M.D., founder of United Cerebral Palsy of Delaware County, Pennsylvania.
 
The late Dr. Edward B. LeWinn, former chief of medicine at the Albert Einstein College of Medicine in Philadelphia and later Medical Director of Clinical Research at the Institute for the Achievement of Human Potential in the same city, attempted to correct the definition of coma, stating more accurately that "coma is a sleep-like state from which an individual has not yet been aroused".
 

 
Coma stimulation program- Therapeutic program using all senses and modalities to attempt to deblock or create a response from the patient. (Early intervention.)
 
 

PARSLEY, SAGE, ROSEMARY...

By Carole Jackson
Bottom Line's Daily Health News

I recently read an article stating that sage helps boost memory. I had thought of it as a delicious herb -- and as the key ingredient in one of my husband's favorite dishes. What else is there to it?

Although sage, which is a member of the mint family, is best known for its culinary potential, herbalist David Winston tells me that people have considered it a cure-all for centuries. In fact, the word "sage" is derived from the Latin for "to heal."

Sage leaves are a true natural pharmacy. They contain a substance called thujone (an oil that can be toxic in large amounts when in its raw form, but the effects of which are substantially lost in cooking), as well as phenolic acids, flavonoids, terpenes and tannin, which fight infection, reduce inflammation and serve as powerful antioxidants. Among the benefits to health and well-being...

  • Sage helps prevent both coronary artery disease and arthritis.
  • The herb improves digestion and relieves intestinal gas, nausea and vomiting.
  • It relieves head colds, runny noses and sore throats -- great news as the flu and cold season approaches.
  • It improves memory. Back in 1597, European herbalists noted how sage "quickens the nerves and memory." Although few controlled studies have been done on sage's memory-boosting potential, research that was published earlier this year had promising results.

MEMORY BOOSTING

Participants in this new study -- which was conducted by scientists at the universities of Newcastle and Northumbria in England -- took either sage oil capsules or a placebo. Those given the sage capsules before a series of word-recall tests performed significantly better than those taking the placebo.

However, don't leap right in and start taking sage on a daily basis, Winston says. He notes that the study was small -- only 44 participants. And the sage used in the research -- Spanish sage -- is not yet commercially available in this country. The garden sage that is used in herbal products has a different chemical makeup and is likely to affect people differently.

To enjoy the health benefits of sage with minimal risk, Winston suggests using it for several days and then taking a break for several weeks. Suggested dosages...

  • Sage capsules -- twice daily, or
  • Tincture -- 20 to 30 drops two or three times daily, or
  • Tea -- 4 ounces twice daily. Use about one-quarter teaspoon of dried sage in four ounces of hot water. Cover and steep for 20 minutes. Try gargling with it if you have a sore throat.
(Source: David Winston, herbalist and founding member, American Herbalists Guild. He is dean of the Herbal Therapeutics School of Botanical Medicine, Broadway, New Jersey.
 

Facts-
  • Two studies from England have found that up to 60% of patients diagnosed 'vegetative' are misdiagnosed and do have some degree of consciousness.
  • The term vegetative state was first coined in 1972 by Drs. Jennett and Plum.
 

 
Research Study Idea- Conduct controlled studies that evaluate the effectiveness of therapeutic sensory stimulation programs using all senses and modalities to attempt to deblock or create a response from the patients who are experiencing coma.
 

Web Links
Coma Arousal
Brain Boosters Link
 

Pittsburgh Area Brain Injury Alliance
December Meeting Notices
 
Next Pittsburgh meeting date:  Tuesday, December 2, 2003
 
Attendees at recent Pittsburgh Area Brain Injury Alliance Meeting.TIME:  7:00 P.M.
TOPIC: To be announced soon.
PLACE: 1323 Forbes Avenue, Pittsburgh Near Mercy Hospital and AJ Palumbo Center
ADMISSION: Free
PARKING: Free Parking Lot adjacent to the building
Contact:  Ed Crinnion at 412.761.9870
Refreshments provided.
 
The next Monroeville meeting date:  Thursday, December 11, 2003
  • TIME:  7:00 P.M.
  • PLACE: Cross Roads Presbyterian Church, 2310 Haymaker Road, Monroeville, Pa. 
  • ADMISSION: Free
  • PARKING: Free Parking Lot adjacent to the building
  • Contact:  Denise Patterson at deenomad@aol.com or Paul Damon at 412.372-2888
  • Refreshments provided.
The next Indiana Twp. meeting date: Tuesday, December 9, 2003
  • Time: 7:00 P.M.
  • Place: the McLaughlin Education Center of HealthSouth, Harmarville.
  • Admission: Free
  • Parking: Free Parking in the HealthSouth Parking Garage
  • Contact Tom Byrnes at 412-531-0343 or Ann Ciotoli at 412-828-1300
  • Refreshments provided.

News Article
Disabled Rally Around Terri Schiavo
By Hugo Kugiya
STAFF WRITER

 November 6, 2003

 Unable to speak and barely able to move, Rus Cooper-Dowda
 could do little to prevent her death. Only 30, she had developed
 a serious form of lupus that had left her in what doctors incorrectly
 thought was a vegetative state.

 She knew the doctors and nurses had all but given up on her because
 she could still hear. She said later that she listened to them describe
 her prognosis as hopeless.

 They said that she would never live a normal life and that if she took
 a turn for the worse, no extraordinary measures should be attempted
 to save her life.

 Contrary to their expectations, Cooper-Dowda, now 48, survived.
 Over the years, she recovered some use of her body, earned
 a graduate degree and gave birth to a son who recently entered college.

 Doctors couldn't explain why her condition got so bad 18 years ago,
 nor why it improved so much, she said. Which is why she thinks
 Terri Schiavo, the severely brain-damaged St. Petersburg, Fla.,
 woman, should be helped, not left to die.

 "People say she'll never fully recover," said Cooper-Dowda, a writer
 and teacher from Florida. "My feeling is, 'So what?' There is
 something between death and full recovery, and it's called living
 with a disability."

 She is one of many disabled people who see Schiavo as a cause
 mirroring their own, even if their medical circumstances differ.
 (Cooper-Dowda was incapacitated for months, not 13 years like
 Schiavo.) Individually, they have spoken out. Last week, they took
 a collective stand.

 "This is a real scary prospect for us, because there are lots of
 disabled people who can't communicate verbally," said Andy Imparato,
 president of the American Association of People with Disabilities.

 Imparato and association board members, with the blessing of
 other disabled rights groups, released a written statement
 condemning the court's decision to allow Michael Schiavo to
 remove his wife's feeding tube. Such action should be confined,
 the statement said, "to those situations in which an individual's
 condition is terminal, death is imminent and any continuation or
 provision of treatment, nutrition and/or hydration would only serve
 to prolong dying ... "

 "No one other than Ms. Schiavo, not even a guardian, has the right
 to make assumptions about the quality of her life," the statement
continued.

 While Schiavo's case has been seen largely as an issue of the
 sanctity of life versus personal choice, of conservative against
 liberal, of religious values against secular ones, the concerns of
 disabled people are more nuanced and personal and do not depend
 so much on politics or ideology.
 
"To us, it's more complex," Imparato said.

 Although doctors disagree on her condition, a state court determined
 that Schiavo, 39, is in an irreversible and permanent vegetative state.
 After her husband received permission to remove her feeding tube,
 her parents, Bob and Mary Schindler, harnessing the momentum
 of public outcry, convinced lawmakers and the governor to help.
 In less than 48 hours, the Legislature passed a bill giving Gov. Jeb Bush
 the authority to order the tube replaced, which he did Oct. 21.

 Michael Schiavo is fighting the law in court, charging that it interfered
 with his wife's right to refuse medical treatment and that it violated
 the state constitution by passing a law that defied a court order.

 While she was incapacitated, Cooper-Dowda tried to communicate
 by writing in the air with her finger. When she heard doctors
 discussing the removal of life support, she tried to spell the word
 "no." She even spelled it backward in hopes they would recognize
 it as a word. Doctors decided her movement was seizure activity
 and sedated her. The more she moved, the more she was sedated.
 Finally, a nurse became curious and put ink on the end of
 Cooper-Dowda's finger, so she could write the letter Y or N,
 for yes and no.

 "It's still terrifying how close I came to death," Cooper-Dowda said,
 "because of all the assumptions someone else made about the
 quality of my life. ... When someone says, 'I wouldn't want to live
 like that,' it's believing it will never happen to you. When it does,
 it's not a bad life or a useless life. It's a changed life."


[Non-text portions of this message have been removed]

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John Pistorius at a recent meeting of the Pittsburgh Area Brain Injury Alliance Peer Support Group.

 

'till next time-Seek to be and remain Barrier-Free.