Pittsburgh Area Brain Injury Alliance

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Pittsburgh Area Peer Support Meeting Held on The First Tuesday of Each Month

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B-NEWS

and Views

Support Lines      Vol. 3  Number 6     April 22, 2005

 

Subscribe, unsubscribe or change your subscription on the www.bisga.org website or visit http://listserv.tbinet.org/scripts/wa-tbinet.exe?SUBED1=b-news&A=1

 

Please forward this newsletter to someone today. We appreciate and welcome your feedback and suggestions. Please send your comments to jp@pabia.org This edition can be read online at http://www.bisga.org/Newsletter/2005/2005.htm .

 

* Inside This Issue:

"It is not your part to guide or supervise the creative process. All you have to do with that is to retain your vision, stick to your purpose, and maintain your faith and gratitude." -Wallace D. Wattles

* Editor's Note

 

Hi Folks,

Picture of John Pistorius

 

 

 

 

 

 

 

I'd like to apologize for not getting this edition out sooner. The last time I sent out a newsletter was March 10th. The month of March was an extremely busy one for me. Nevertheless, much good has come from the busyness.

 

We have several new subscribers since the last edition of B-NEWS was sent out. Welcome. Please remember that your email address is never given to anyone for any reason, and you can unsubscribe any time you please.

 

If you want to unsubscribe and are unable to unsubscribe yourself for any reason, just send me a note personally and I'll remove you from this mailing list. One thing for sure, if you want out, I'll make sure you are removed! My email address appears as the 'From' address on every newsletter even though it is sent through a list server. I encourage readers to send their comments, suggestions, stories and opinions to me also. All constructive criticism is applied as a method to improve this publication.

 

Usually, this newsletter is sent to subscriber's email inboxes. But time does not permit me to send it out this time. I've opted to place it on the web only.

 

Lots of things are happening. In the public realm, the healthcare budgets are getting cut everywhere. Disability advocates and service providers are fighting to stop the cuts.

 

In my personal life, several significant changes have brought me face to face with cognitive dissonance again. My ability to publish this newsletter might be affected.

 

A friend and mentor, Chester White, has been a strong advocate in my life. After telling him of the serious changes in my personal life last night, he told me this: "When going through Hell, don't stop."

 

I've designed this edition of B-NEWS to motivate and inspire. This edition is a bit off the usual path of information related only to head injury, concussion and brain injury. I'm unsure of when I'll publish again. This note might not be inspiring or motivating, but much of the rest of the content of this newsletter is.

 

I felt that I needed to share some positive, motivational information after watching the public execution of a woman who had committed no crime. I thought uplifting material was appropriate and desirable. The in-your-face, matter of fact, deliberate dehydration of Terri Schiavo to death has had a profound effect upon me. I needed to focus my attention on some things that are good.

 

Read on my friends. And I will keep doing what I can do to deliver the message of accessibility, accommodation, inclusion and person-centered, functional need-based service delivery wherever I am. Like it or not, I'm one-tracked and non-compliant in that way.

 

Till next time-
John

 

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"View a negative experience in your life like you'd look at a photo negative. A single negative can create an unlimited number of positive prints." -Gerhard Gschwandtner

* Three Keys to Greatness

by Jim Rohn

 

Several years ago I went into the studio and recorded a 56-minute video for teenagers called, "Three Keys To Greatness." Although my focus was for teenagers, the principles I shared certainly apply to adults as well.

Recently I was asked to list these three things using one to two sentences for each. Now for your benefit here they are again.

1) Setting Goals. I call it the view of the future. Most people, including kids, will pay the price if they can see the promise of the future. So we need to help our kids see a well-defined future, so they will be motivated to pay the price today to attain the rewards of tomorrow. Goals help them do this.

2) Personal Development. Simply making consistent investments in our self-education and knowledge banks pays major dividends throughout our lives. I suggest having a minimum amount of time set aside for reading books, listening to audiocassettes, attending seminars, keeping a journal and spending time with other successful people. Charlie "Tremendous" Jones says you will be in five years the sum total of the books you read and the people you are around.

3) Financial Planning. I call it the 70/30 plan. After receiving your paycheck or paying yourself, simply setting aside 10% for saving, 10% for investing and 10% for giving, and over time this will guarantee financial independence for a teenager.

If a young person, or for that matter an adult, focused on doing these three simple things over a long period of time I believe they will be assured success!


To Your Success,
Jim Rohn

 

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"There are no guarantees. By the way, is there a chance that you could embark on a challenging goal ... and not reach it? Absolutely. But, when you set an ambitious objective and give it your all, you are a winner and can hold your head high regardless of the end result." -Jeff Keller, Attitude is Everything

* Stakeholder Planning Team (SPT)

Advisory Committee to the PA Department of Welfare

John Pistorius

 

I've attended three meetings of the Stakeholder Planning Team (SPT) to date. The leadership of the SPT has been openly responsive to my requests for accommodation. I've commented about ways to improve accessibility and the leaders have made efforts to improve the cognitive accessibility of the meetings.

 

A few things can be done to further improve access to the Stakeholder Planning Team Meetings. I'll be presenting my ideas to the leadership in the near future.

 

Please remember that you are welcome and encouraged to attend meetings of the SPT. All expenses will be paid or reimbursed for those who are not compensated by their company to attend.

 

For more specific information about this advisory committee, please visit: http://www.bisga.org/Newsletter/2005/jan_7,_05.htm

 

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The wise person in the storm prays God, not for safety from danger, but for deliverance from fear. It is the storm within which endangers us, not the storm without. -Ralph Waldo Emerson

* Overcoming the Fear of Rejection

by Dr. Denis Waitley

 

To conquer your fear of rejection, you need to handle the word "no" in a constructive way. When people turn you down after a presentation, you have to interpret the "no" as "no this is not right for me now." We also can interpret "no" as meaning, "I need to know more about this opportunity or the products before I can say yes."

I look at the service I offer to others as a gift that almost everyone desires. It's like a nutritious dessert. What if waiters or waitresses in a restaurant said to customers at their tables: "Would you like our special strawberry parfait for dessert? It's the best in the world!" And they were told "no" by their patrons, three out of five times.

Would they go to their manager, throw up their hands and quit, lamenting, "They don’t like me or my strawberry parfait"? Of course they wouldn't. They'd go on about their business, thinking the patrons had missed out on something delicious.

That's why I treat products as a gift, much more nutritious and beneficial than a fruit dessert. But what is being rejected is the presentation, not the presenter. When I can separate my self-esteem from offering the products or business opportunity, I can live with rejection and look for ways to get a positive response more often.

When you are experiencing rejection, that's the time to network with mentors and role models. It's also the time to listen to upbeat music and read articles like this, to attend meetings and conference calls, and to hang around with optimists and winners.

There are basically four things we do in selling our products and services, and only four. We use the products and services ourselves, we talk to people about the products and services, we talk to people about the financial benefits we offer, and we coach them to refer us to others who do the same thing. First, we are coachable and willing to learn something new every day. Then, we become coaches. All you really need to move up to the next level is have faith in yourself.

To laugh is to risk appearing the fool. To weep is to risk appearing sentimental. To reach out for another is to risk involvement. To expose your feelings is to risk revealing your true self. To place your ideas and dreams before a crowd, is to risk rejection. To love is to risk not being loved in return. To live is to risk dying. To hope is to risk despair. To try is to risk failure. But risks must be taken because the greatest hazard in life is to risk nothing at all. People who will risk nothing --- do nothing, have nothing, and become nothing. They may avoid suffering and sorrow, but they cannot learn, feel, change, grow, love or live. Chained by their certitudes, they are slaves.

They have forfeited their freedom. Only a person who risks is truly free.

And one last idea you can live and believe, is the more that you give ----- the more you'll receive!

 

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"You can get everything you want when you begin to see your obstacles as your opportunities." -Dr. Rae

*Pennsylvania Department of Health Grants Received

John Pistorius

 

On March 1, 2005, the Pennsylvania Department of Health sent out an email notice about grant money which was available to promote education and networking at the grass roots level focused on traumatic brain injury. The message stated that "funds in the amount of up to $1,360 were available for five support groups to establish or expand existing support groups."

 

Upon receiving this message, I wrote to Drew Nagle, President of the BIA of PA. I asked if Brain Injury Association of PA (BIAPA) was willing to permit PA Support groups to access this funding via the BIAPA Federal Tax ID number. Drew promptly replied with, "I will forward your request to the BIAPA Executive Committee who are meeting tomorrow, and will get back to you after the meeting."

 

So I immediately contacted the Grant Administrator, Becky Kishbaugh, with the following message: "Does the Federal tax ID number need to be a 501c.3 or can individuals running the groups use a personal tax ID? We have many group leaders in PA that operate out of their own pockets but have no Federal 501c.3 ID number." and "Can you give me a more specific list of items this money can be used for? Or perhaps if the list of prohibited items is smaller, you could send it instead."

Then I forwarded the original message to other support group leaders with whom I am acquainted.

 

Ms. Kishbaugh responded immediately. She told me that we had to "spend the money by March 31, 2005 on activities, materials, speakers, etc that will help strengthen existing TBI support groups or create new support groups." She also said that she was "open to any suggestions as to how the money could be spent to accomplish this." and "The money must go directly to benefit the group."

She also wrote: "Ineligible costs would include administrative/indirect costs; purchases or activities mandated by the Americans with Disabilities Act; new building construction or structural renovation of an existing space; capital expenses or equipment."

 

Then on March 3, 2005, I learned that the total amount of $3,000 could be used by one group! So I decided to make sure that this money was used to benefit local support groups.
 

Bruce Marion, a long-time volunteer had a great idea for converting our videotape library into DVD's. But we do not have the equipment to copy the videotapes to DVD's, and the grant could not be used to purchase the equipment. So that idea would not be eligible for the funding.

 

In my role as the founder of the Brain Injury Support Alliance, I created a manual for developing or strengthening peer-to-peer support groups. The manual was available through the www.bisga.org website, but it did not have specific information for Pennsylvania in it. After a couple of days of emailing back and forth with Ms. Kishbaugh, I sent her a copy and received the Ok to have this manual printed. I began editing this document to make it specific to the Commonwealth of PA., and began seeking a printing company that would produce the highest number of copies for the lowest price.

 

By March 11, 2005, I found a printer that said they could make twice as many as the next lowest cost printer. After finding the printer and arranging to have the printer receive payment directly from the PA DOH, I finished the editing and sent the document to the printer. They sent me the proof March 17th. After making a minor change, I sent it back to the printer. The Dept. of Health paid the printer directly and the printer sent me a revised proof March 23rd.

 

The printer delivered the manuals two days before the deadline, March 29th.

 

While proofing the manuals, on March 18th, I learned that no other groups had used the funding that was available. Another grant was offered to me to be used for the Pittsburgh Area Brain Injury Alliance. Remember that the deadline was March 31st. So we had to act fast. I proceeded to do what I could to prepare documents for several PABIA affiliated groups to use while finalizing the BISGA grant process and Ten Insider Tips Manual printing. Since I already had the tools in their generic state, I simply needed to insert the specific contact information for each group.  It took a few days of telephone calls and email messages to get the correct contact information for the seven groups I was working with.

 

Glitches

After editing the 21 projects, one group leader told me that he wanted to change the Meeting Notice Poster templates that I sent him to proof read. He completely revised the poster and with my help, included tear-off tabs. Then he had them printed separately.

 

Then, just two days before the deadline, another group leader called to tell me that she was no longer interested in leading the group. So I had to remove that project from the list.

 

At about the same time, I received the quote for the printing of the multiple projects. I was dissatisfied with the quantities that we could receive. So I drove to the printer to negotiate the numbers. I decided to have two brochures printed and five meeting notice posters printed. Each of the meeting notice posters were personalized for each group. One of the brochures was personalized for the Pittsburgh Area Brain Injury Alliance and the other was not personalized. It contained a space where each group leader could place their personal contact information.

 

This strategy proved to be the most cost effective. We were able to have 10,950 PABIA brochures printed and 10,950 of the other brochures printed too. This was because the printer could use larger stock paper to accommodate both brochures and run one printing press. Each group has 200 meeting notice posters with tear off tabs containing contact information. These projects were ordered March 31, 2005. Right on time to beat the deadline!

 

The paperwork for the BISGA Support Group Training Manuals needed to be completed and submitted and Ed Crinnion had to complete the PABIA paperwork. So I jumped in my truck, drove to Ed's house and we filled out his paperwork, and faxed it to Becky Kishbaugh. Then I drove a copy of the documents to the Post Office and mailed them by 9 PM, March 31st!

 

This was an exhilarating experience. There were times when I thought I'd fail to get anything done at all. But in the end, the projects were printed, funding secured and support groups are beginning to receive the materials that will strengthen their position in their communities by giving the members a way to reach others who can benefit from peer support. And that's what really matters.

 

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An unconstitutional act is not a law; it confers no rights; it imposes no duties; it affords no protection; it creates no office; it is in legal contemplation, as inoperative as though it had never been passed." Norton v. Shelby County, 118 US 425 (1885)

* Additional Resources
 

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If you've ever felt unsure about WHAT action to take toward your clear mental image or exactly WHEN to take action, you're going to LOVE this ebook!

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There are two ways of meeting difficulties.  You alter the difficulties or  you alter yourself to meet them." -Phyllis Bottome

*New Support Group Started in Erie, PA

John Pistorius

 

Last year, with the help of others, I assisted in the creation of a support group that met in the Oakland section of Pittsburgh. Eventually, this group stopped meeting. But not before I directed Nicole Jezowicz and her family to it. I attended a few meetings with Nicole and her family members. The group met their needs. They were only sorry that a similar group was not available in Erie, PA where Nicole lives.

When Nicole expressed her concern about driving two hours into Pittsburgh to attend the meetings, I offered to help her start a group there. She willingly accepted the challenge and we immediately got to work.

We met several times in Erie. Nicole found a place to meet, secured refreshment donations and notified the press as I had instructed her. She was not interested in taking control of this meeting and doing things her way. Instead, she deferred to my experience and knowledge. Nicole studied the materials that I provided and followed the example of successful peer-to-peer support groups as illustrated in the Ten Insider Tips training manual.

The first meeting was held April 6, 2005 in a meeting room at the Christ United Methodist Church, 32nd St. at Zuck Road, Erie, Pa. It was a success with ten persons in attendance. The parents there discussed ways in which they supported their loved ones through the recovery process. The individuals who survived TBI talked about the importance of having support.

The attendees talked about the need for peer support in Erie, PA. One woman, an employee of the local rehabilitation hospital was upset that she was unable to find a support group within that facility. She learned that a group once existed but had fizzled out. I’ve been told recently that this facility-based group might be resurrected.

Rita Parks, a former long-time support group facilitator, commented about whether this new group would be for parents and individuals who experience tbi. It was agreed that this new meeting was open to all concerned persons and the meeting place could be divided to accommodate two distinct groups. She also raised the question about individuals with mobility devices attending. I responded with, “It is my opinion that all persons interested can attend.” If the need arises to diversify and spin off different smaller groups to better accommodate individuals, then that is what will be done.

In my experience, I've learned that several meetings can be held in the same town. I believe this new meeting will succeed because it is being led by a woman who is committed to leading the group. She is willing to do what needs to be done and has shown her commitment to following a well designed plan of action. If the need arises for additional peer support groups, I believe Nicole will rise to the challenge and encourage their development.

The next meeting is scheduled for March 4, 2005. Anyone interested in attending can contact Nicole Jezowicz at (814) 835-3082 or email: NIKDSULLY@aol.com. Everyone is welcome and encouraged to attend.

(Editor's note: Please remember that anyone interested in starting a peer-to-peer support group can contact me at jp@pabia.org or (412) 481-0443 to receive free assistance and tools to get a group started in their area.)

 

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"In Britain, more babies with Down syndrome are aborted than are allowed to be born. In America, more than 80 percent of the babies diagnosed prenatally with Down syndrome are aborted. This is dismaying to, among others, the American Association of People with Disabilities, whose premise is that "disability is a natural part of the human experience.""

-George F. Will, washingtonpost.com, Thursday, April 14, 2005; Page A27

* Real Life

by John Pistorius

 

I met a family a couple of weeks ago who told a story that I'll share. In my opinion, it uncovers one of the very real motivations behind killing people with disability labels.

The mother tells how her 22 yr old son was in an auto accident. He sustained a brain injury and was taken to the hospital. The family was told by the professionals that he was in an irreversible state and was expected to die. They were asked to give permission for organ harvesting. They refused to give up on him.

The mother’s eyes fill with tears as she tells the story. She explains that while she was praying with others for her son, another mother was there for her own son. They offered to pray with the woman for her son. But the other woman refused. The mother told me that she learned later that the other woman's son was waiting for a heart transplant. The hospital was trying to get this mother to let them harvest her son's organs while promising the other mother a "new" heart for her boy.

I realize that this is an isolated incident. It is probably a unique situation. But it points to a problem that is rarely, if ever, looked at. Human body parts have become a commodity. One person has to die in order for another to receive a part they need to continue to live or function. And sometimes doctors practice deciding who lives and who dies.

Even without the above information, the mother whose son sustained the brain injury stayed firm in her resolve to keep her son alive. She refused to part him out. He survived that night and many more since. However, the mother told me that when he was in the hospital that "somehow he was going to fall out of bed" while she was not there. The medical company employee, who stopped the fall, grabbed the shunt and feeding tube to pull him back to the bed, thereby ripping these devices out and causing additional injuries. (Appalling?)

Because of the unofficial shunt removal and damage, docs decided to drain fluids via spinal taps. On one such occasion, again when the family was out of the room, instead of draining 10 cc of fluid, the nurse forgot to check and 60 cc's were drained. This was equal to sucking his brain dry. The mother tells me that his brain stem was injured by this negligent act. She tells how he was violently shaking and his eyes were completely bloodshot when she returned. And how the so-called professional casually apologized because she forgot to check on him! (Angering?)

He is now receiving therapy in a rehabilitation facility. But the insurance company representative has told the family that they are not willing to spend any more money on him. This insurance company employee stated that he was concerned that he could lose his job. The mother has fought successfully to have the son's therapies continue. But how many mothers lose? Will you win for your loved one?

This story brought some things together for me. I know that many individuals are pushing euthanasia for a lot of reasons. I believe the insurance industry is pushing this for their reasons too. Perhaps the human body parts doctors are pushing this also. I know that money is the motivating factor behind euthanasia. It’s about BIG money.

Euthanasia Wants You
Each and every citizen of United States of America is eligible for euthanasia. I've met countless numbers of people who would be food for worms right now if not for the efforts of caring parents or spouses and funding for services.

Citizens of other countries were looking to us to set a positive example in favor of life regarding Terri Schiavo. We let them down. Not only have we failed this one woman, but we have failed millions of human beings all over the world. In third-world nations where human life is considered cheap, we have affirmed their stance. We have proven to the world that the citizens of these great United States of America do not value human life. Not truly.

Brain injury does not discriminate. It comes without warning in most cases like a thief in the night. Usually with little or no notice, it robs productive people of their ability to defend themselves from others who perpetrate all sorts of crimes. No one is immune. Not even YOU. And now death has been sanctioned as a response to brain injury. Terri Schiavo was not terminally ill. Her murder was not performed secretly. It was done in the public square with all cameras focused on the event. It was broadcast all over the world. You cannot say that you were not warned.

Maybe you are one of the people that I've heard say "I wouldn't want to live like that." or "Who would want to live like that?" or "Those people cost a lot of money to keep alive." or any number of other derogatory statements and comments.

One person wrote to me, a pastor, who told me that removing the feeding tube was only permitting nature to take its course. I didn't disagree. Anyone could simulate the inability to speak by having a rag stuffed in their mouth. They could have their hands tied and stop themselves from consuming any food or water. Nature will take its course with them too. Death will be as excruciating and drawn out for them as it was for Terri Schiavo. And with or without disability, death will probably not take any longer to come to them than it did for her.

I have faith in the goodness of this nation. It is indeed the greatest place on earth. Yet our country is sick. The sickness is not being treated. It is a moral disease that causes people to be divided. On both sides of the line, we have hypocrites. On both sides we have agitators who further the divide. If human life is not sacred, then nothing is.

Automobile Lesson
Everyone in modern society lives at the mercy of motorized transportation systems. Even the persons who are homeless eat food that has been transported by petrol-fuel based transportation systems.

The personal automobile machines that we use are designed to move us from one place and point in time to another place, forward in time. They offer some degree of comfort, style and usability. However, their useful life has functional limits. These limits can be influenced by many factors.

When an automobile has reached the end of its useful life, we have recycling centers that process these machines. Some people call them junkyards. The operators of these recycling yards are keenly aware of the value that remains in a “used-up” or “broken-down” personal transportation machine. And they are adept at extracting the remaining value from these machines.

One of the ways in which this remaining value is harvested from our discarded automobiles is by disassembling them and selling off the useable parts. A certain demand exists for many parts because manufacturers sometimes use identically designed mechanical parts for many years. These parts are interchangeable between many models and many years of manufacture. Of course everyone knows that the color of the paint used on these machines does not affect the usability of the parts from that machine. Therefore, every personal transportation machine that ends up in the hands of the professional auto dismantlers and recyclers can be converted into money for these pros. These dismantlers remove parts from discarded units and sell them to others to repair other vehicles. This can be a very lucrative business, especially when legislation is enacted to stiffen the rules governing safety, emissions and usability of the machines.

Laws insure the addition of newer models to the recycling yards’ storehouse of parts by making it cost prohibitive to maintain the damaged vehicles. Those that can be dismantled are looked at as parts and profit. The others are looked at as disposable, crushed, and melted down to be used as feed stock for new materials in the manufacturing process. And this fills the recyclers’ pockets with lots of loot!

 

There is another side to this automobile recycling business. It is one of profound greed. Autos that could continue to function are routinely dismantled because they are more valuable to the dismantlers that way. Some auto mechanics are tied to the recyclers. They feed customers to their affiliates. This type of collaboration terminates the life of countless machines every year.

 

On the dark side of this business, some recyclers accept perfectly good autos from unscrupulous suppliers who bring perfectly functional units to them. Many of these units are stolen. Some are made to disappear by insurance fraud. Others are deliberately disabled by the mechanics who are tied to the professional dismantlers.

Profiteering on Humans
Once upon a time, judges and legislators were united on slavery in this country. Human beings were labeled as non-human by external criteria. Those in power used specific terminology to devalue human life and to use humans to benefit and profit their selves. Based on external criteria that had nothing to do with intrinsic value, humans were routinely killed, maimed and enslaved by others who were able to reap huge profits by disempowering this group of people. However, we overcame this type of human abuse with enlightened language choices and a determination to end the inhumane treatment of human beings.

I believe the persons who were most affected by slavery were those who had been enslaved all of their lives. They just couldn't see a way out. They were disabled by their inability to even imagine freedom. But scores of people were able to see a way out and they were able to fight for freedom.

I also believe many of the people with disabilities caused by brain injury are like the slaves who had lived disempowered lives. They cannot envision freedom. They are bound by invisible chains. Some of these bindings are only in their minds. Others are a part of the way they are excluded from participating in life.

They are chained to an inaccessible world that denies their humanity. They are shackled to undignified treatment that is promoted and sold as dignity. Few are able to speak out about the abuse they are subjected to. Many are unable to fight because of the nature of their disabilities. These facts make them vulnerable in ways that slaves could never have imagined.

In this new model of slavery, the wealthy “plantation owners” have lost their original profit motive. The paradigm is shifting. The disempowerment of human beings being perpetrated upon those who have functional limitations has just reached a new low with the well-publicized lynching of Terri Schiavo. People with disabilities are fair game for all manner of discrimination. The open murder of Terri proves it. They might as well have wrapped a rope around her neck and tossed her over the side of a bridge.

Profiting from the delivery of minimized services and institutionalization and incarceration of individuals with disabilities has long been fought by persons who themselves experienced impairments that were labeled disabilities. But how can a dead girl fight back? How can the millions of people who live with impairments that are classified as disabilities fight the recycler’s mentality? In our image conscious society, many persons with disability labels are perceived to be junkyard material. Those that can be dismantled are looked at as parts and profit. The others are looked at as disposable. After all, we do live in an overpopulated world where natural resources are endangered.

 

We live in a society that has grown up on disposable products that are made to be consumed. We have objectified human beings. As objects, humans only have value insomuch as they can serve us in some capacity. Once we label people "disabled" or when they no longer serve our purposes, we want to dispose of them like yesterday's newspaper.

While persons with disabilities fought for freedom from oppressive, inaccessible systems and services to be accommodated into mainstream society, the new “plantation owners” were fighting for the money. Persons with disabilities are expendable because in the eyes of these plantation owners, they are chattel. And they have become a liability instead of an asset. What better way to raise the bottom line of companies than by cutting liabilities and improving access to profitable materials? It makes good business sense.

Die Hard
You might be cut next. One bump on the head and you can get demoted from human to vegetable status. Maybe you think you wouldn't want to live like that. But think about whether you want to die like that. Just for kicks, go one day without food and water to get a feel for it. If you can get through one day, push for two. Dehydrate yourself and feel how "natural" death would feel under those circumstances. Then, those who told me that this was "letting nature take its course" and those of you who said that this was the "best thing" for Terri Schiavo can tell me how natural it feels. But I doubt it because when it comes down to it, no one would ever ask to be murdered the way that Terri Schiavo was.

My hope is that parents, siblings and spouses fight for the lives of their loved ones to keep them from being made dead. If not, God help us.
 

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Alternate Medical Definitions
                Secretion.............Hiding something

* Using Your Head

 

Drwing of Einstein pointing to his head

 

Motivational Tip For The Day
  by Jan Tincher

In his book, *The Science Of Getting Rich,* Wallace D. Wattles says, *You cannot retain a true and clear vision of wealth if you are constantly turning your attention to opposing pictures, either external or Imaginary.*

Are you constantly thinking of, or telling others, about your past financial troubles?

Stop it.

Do you talk about your overdue bills to others?


Stop it.

Do you talk about how your gas bills are so high, you can't afford them?

Stop it.

Do you talk about how the interest rate on your charge cards are killing you?

Stop it.

I am not saying the problems will go away, I am saying that if you make a conscious effort to focus on the good in life, the good will come to you. If you focus on your problems, it won't.

It's that simple. What are YOU focusing on or thinking about?

-----

Be a success!  Let Jan Tincher, Master Neuro-Linguistic
Programmer, help you!  Great articles, great strategies you can
implement immediately!  Go here now:
http://www.tameyourbrain.com/success/index1.htm

 

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Change is not made without inconvenience, even from worse to better. - Richard Hooker

* The Eyes of Truth (Song Lyrics)

By ENIGMA

   

If you understand or if you don't

If you believe or if you doubt

 

There's a universal justice

And the eyes of truth

Are always watching you.

 

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"Kind words can be short and easy to speak, but their echoes are truly endless." - Mother Teresa

* Urgent - Action Needed on SSI


Like Medicaid, SSI also is in serious jeopardy in the budget bill conference negotiations.  A paper explaining the issue is now posted on the Consortium for Citizens with Disabilities website at:

http://www.c-c-d.org/SSI%20Threat4c.pdf.
 

(Editor's note: The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.)

 

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Where rights secured by the Federal Constitution are involved, there can be no rule-making or legislation which would abrogate them." Miranda v. Arizona, 384 US 436 (1966)

* Easy Microwave Cleaning


Is your microwave oven a mess? Well, here is an easy method of cleaning it.

 

Put two tablespoons of lemon juice in a cup of water. Microwave this mixture of lemon juice and water in a microwave-safe bowl for about 7 minutes.

 

Allow the heated mixture to cool. Check to make sure it is cool enough to touch. After carefully removing the bowl, wipe the microwave down with a soft cloth. It's that easy. Repeat as often as necessary.

 

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"If you fail to direct your subconscious mind, it produces under a law of averages, and you are a nice, ineffective, sweet person." -Raymond Charles Barker

Mail Bag

* A Mother's Plea From Zimbabwe

 

Dear John,

Thank you for your newsletter and above all, for your caring. I live in Zimbabwe - a country afflicted by political and often violent disruptions. It is not an easy place to live in. But, euthanasia is a crime here and that is the only reason my son, Steve, remains alive to this day following a lightning strike to his head in 1997. Steve's case is very similar to the Schiavo case and what is happening in the United States of America to Terri is being closely followed in Zimbabwe by Steve's wife (who has also 'got on with her life' and lives with another man). Surreptitious activities have taken place to end my son's life - ranging from acute starvation, to leaving fissured catheters in place and causing extreme agony. On one occasion a surgical procedure (digging into bedsores with a scalpel) was carried out without any form of pain killer being applied and one can only imagine the suffering.

Steve cannot speak, or move. He has less than an hour's therapy once a week, which is of little if any benefit. He was even pushed off the bed (albeit accidentally) and no x-rays acquired for three days until I discovered from facial grimaces, and hand squeezing what had occurred. Even then, they refused to x-ray his whole body, only those areas where I could see deep bruising. I was told by the person in charge of the hospital that he would be better off dead - and he was withdrawn from all medication.

The reason I am writing this to you - is not about Steve specifically - but to alert the people in the United States of America that your country is the 'role model' for the third world and what is being done there will be considered 'civilised' in Africa. I am fighting for my son's life with the same determination and desperation of Terri's parents - and I will lose that fight, if Terri's life is taken 'legally?' away from her, for definitely the decision to end Terri's life by the courts and the medical system in the USA, will be the 'starter's gun' for mass execution of helpless patients in a continent where human life is cheap and AIDS and other diseases are already taking a terrible toll.

Please don't let America make this a precedent. Fight on against this terrible murder mentality for the sake of people around the world, who look to the USA for guidance and compassion. If they kill Terri, then they will kill my son also.

Susan.
Harare Zimbabwe

 

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* "IT IS MURDER IF THIS WOMAN MUST DIE"
(Article in Beeld/Pretoria on 24/3/2005/Philip de Bruin)
Translated by Elna Rudman


"It is murder.  God help the sorry society where she lives!" Mrs. Elna Rudman of Wingate Park, Pretoria talks candidly over the fight in America over the so called brain dead Mrs. Terri Schiavo of Florida.


Rudman is entitled to an opinion.  Her son, Roald, was as a 2 year old declared brain dead by a police officer on 6 October 1997 after falling into the family's swimming pool.  Now she is as the founder of and unofficial leader of the only support group in South Africa for parents with children that suffered severe brain damage. She is also a member of overseas organisations: Parents of Near drowns, Neurotherapy Group & Traumatic Brain Injury Group on a warpath.

 

She fought as one woman alone from South Africa for Terri Schiavo's life.  She already contacted every senator possible who she could obtain details for, via e-mail to help the fight for Terri's life.  Yesterday she also send an e-mail to CNN.  In this e-mail Rudman says she is "highly upset that the American public support a man (Schiavo's husband) that is a murderer in my opinion."  Mr. Schiavo wants to stop all medical treatment to his wife but her parents asks for her to live en that they will take care of her.  "Is Mr. Schiavo now all of a sudden God?  Why does he not divorce her and let her parents take care of her? She is a self-breathing living human being," says Rudman in a e-mail to CNN.


Yesterday she told Beeld : "Terri laughs, she smiles.  She is not in a coma or connected to a respirator.  She does what my child does - says a word here and there.  How on earth can they say she is vegetative or brain dead?" "It is easy for people outside of the situation to say : Let her die.  It is totally a different story if you live a brain injury 24/7, like us with Roald.


Terri reacts just like Roald and if I think of the love and dedication that we have looked after Roald for the last seven years, I am appalled that such a thing (as is happening with Terri) could happen to my son." Roald, now 10 years old, is today "his mothers angel that only gives her pleasure on a daily basis."


e-mail address of correspondent : pdebruin@beeld.com
 

(I translated from Afrikaans to the best of my ability!!!!!)
Elna Rudman
Pretoria/South Africa
elnar@netactive.co.za

 

(Editors note: I was privileged to introduce Elna (from Pretoria) to Sheila (from Cape Town) after meeting them independently through email. They have since joined together to form the only peer support group in South Africa for parents of children who survive near drowning accidents.)

 

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"Those who won our independence believed that the final end of the State was to make men free to develop their faculties; and that in its government the deliberate forces should prevail over the arbitrary. They valued liberty both as an end and as a means. They believed liberty to be the secret of happiness and courage to be the secret of liberty. They believed that freedom to think as you will and to speak as you think are means indispensable to the discovery and spread of political truth; that without free speech and assembly discussion would be futile; that with them, discussion affords ordinarily adequate protection against the dissemination of noxious doctrine; that the greatest menace to freedom is an inert people; that public discussion is a political duty; and that this should be a fundamental principle of American government...they knew that order cannot be secured merely through fear of punishment for its infraction; that it is hazardous to discourage thought, hope and imagination; that fear breeds repression; that repression breeds hate; that hate menaces stable government; that the path of safety lies in the opportunity to discuss freely supposed grievances and proposed remedies; and that the fitting remedy for evil counsels is good ones." - Justice Louis Brandeis, Whitney v. California, 274 US at 375

* Support Group Development Tools

Free Help for anyone Starting or Running Peer Groups

 

The Ten Insider Tips manual is ready for release. Anyone interested in receiving a copy of the manual and tools can visit http://www.bisga.org/tools.html or  write to John Pistorius at jp@pabia.org or call (412) 481-0443 to receive a free CD with the support group tools created so far.

 

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"It is not how much we do, but how much love we put in the doing. It is not how much we give, but how much love we put in the giving." -Mother Teresa

* Upcoming Peer-Support Meetings and Social Events

 

Please visit http://www.pabia.org for a complete listing of Pittsburgh Area Peer Support group meetings. Please mark your 2005 calendar for each month in advance as an ongoing reminder.

 

We do not have any control over the people who are responsible for directing these meetings. Therefore, if you are interested in attending any of the meetings, please contact the person listed for that meeting to confirm the date, meeting place and time.

For more complete information please visit the directory of meetings at http://www.pabia.org/Support%20Groups/Support%20Groups.htm

 

For a list of State Brain Injury Associations and the groups in those states, please visit:  http://www.biausa.org/Pages/state_contacts.html

 

Brainstormers International Email Support Group

 

We have two email support groups you can join. One is through Denise Patterson. Contact Denise at deenomad@aol.com to be added.

 

The other is through Yahoo Groups. You can join at http://health.groups.yahoo.com/group/Brainstormers101/

 

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A man can fail many times, but he isn't a failure until he begins to blame somebody else."  - John Burroughs

 

* Thank You!

B-NEWS Contributors- your insight, articles, poems and comments are vital to the success of this publication.

B-NEWS Subscribers- Without you, I'd have no reason to publish.

 

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'When the morning's freshness has been replaced by the weariness of midday, when the leg muscles give under the strain, the climb seems endless, and suddenly nothing will go quite as you wish-it is then that you must not hesitate.' - Dag Hammarskjold

* B-NEWS Subscriber Policy

 

We aim to inform, inspire and empower people to be their best. We value every subscriber and respect your privacy. Our subscriber list is NOT made available to anyone for any reason. We do not sell, rent or lend our mailing list. If you find this newsletter to be of value, we invite and encourage you to forward it (in its entirety, please) to your friends. Sometimes people choose to stop receiving "B-News". You may unsubscribe at any time by following the instructions provided at the end of this message. We don’t want to send this to anyone who doesn’t wish to receive it, and we will make every good faith effort to remove you if you notify us of your intent to be removed.

 

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“I believe that imagination is stronger than knowledge, that myth is more potent than history, that dreams are more powerful than facts, that hope always triumphs over experience, that laughter is the only cure for grief, and I believe that love is stronger than death”. -Robert Fulghum

 

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"Don't wish it was easier; wish you were better. Don't wish for less problems; wish for more skills. Don't wish for less challenges; wish for more wisdom." Jim Rohn

 

Animated gif of David and Goliath.

 

 

 

Till next time, Seek to be and remain Barrier-Free. You have the power.

 

 

 

'The only competition you will ever have is the competition between your disciplined and undisciplined mind.' - James A. Ray

* ETC.

Thank you for subscribing and reading this newsletter. It is yours. This newsletter may contain articles, news releases and other items of interest supplied by or received from third parties.

 

Required Disclaimer: Nothing contained herein is intended to be substituted for medical, legal, accounting or other professional advice. The information provided herein should not be taken as a health-care diagnosis, treatment, course of therapy or as any other approved or prescribed health-care advice or instruction. The information is provided with the understanding that the publisher is not engaged in the practice of medicine or any other health-care, legal, accounting or other profession and does not enter into a health-care, legal, accounting or other professional practitioner/patient/client relationship with its readers. The publisher does not advise or recommend to its readers treatment or action with regard to matters relating to their health, legal, accounting or other professional needs or well-being other than to suggest that readers consult appropriate professionals in such matters. The publisher does not recommend or suggest that action should be taken based solely on the content of this publication. The limited information and opinions provided herein are believed to be accurate and sound at the time of publication, based on the best judgment available to the authors. However, readers who rely on information in this publication to replace the advice of health-care, legal, accounting or other professionals, or who fail to consult with health-care, legal, accounting or other professionals, assume all risks of such conduct. The publisher is not responsible for errors or omissions.

The contents of this E-zine may be copied, reproduced, or freely distributed wholly or in part for all nonprofit purposes without the consent of the author/editor as long as the following copyright notice and contact information are included.

Compilation Copyright © 2005 John Pistorius jp@pabia.org . Permission granted to freely copy, use and distribute for non-profit purposes only.

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Thomas Edison said: "If we all did the things we are capable of doing, we would literally astound ourselves."

It recently occurred to me that Love is action that improves another person's life. Not just words, but action. Doing something, anything, that positively impacts other people's lives and leaves them even just a little bit better off physically, emotionally, psychologically or spiritually, that's love. -John Pistorius

 

Do something to leave someone a little better off today.


The Beauty of Love:


The question is asked, "Is there anything more beautiful in life than a young couple clasping hands
and pure hearts in the path of marriage? Can there be anything more beautiful than young love?"
And the answer is given. "Yes, there is a more beautiful thing. It is the spectacle of an old man and an old woman finishing their journey together on that path.  Their hands are gnarled, but still clasped; their faces are seamed, but still radiant; their hearts are physically bowed and tired, but still strong with love and devotion for one another. Yes, there is a more beautiful thing than young love. Old love." -Unknown Author