|
Home Up
Newsletter Sign-up

Click to join Brainstormers101
Free PowerPoint 2003 Viewer
Free Adobe
Acrobat Reader
The EzineXchange - Your Source
For Free Newsletters
| |
|
B-NEWS
and Views |
Subscribe, unsubscribe or change your subscription on
the www.bisga.org website or visit
http://listserv.tbinet.org/scripts/wa-tbinet.exe?SUBED1=b-news&A=1
*
Inside This Issue:
|
"It is not your part to
guide or supervise the creative process. All you have to do with
that is to retain your vision, stick to your purpose, and maintain
your faith and gratitude." -Wallace D. Wattles |
Hi Folks,

I'd like to apologize for not
getting this edition out sooner. The last time I sent out a newsletter
was March 10th. The month of March was an extremely busy one for me.
Nevertheless, much good has come from the busyness.
We have several new
subscribers since the last edition of B-NEWS was sent out. Welcome.
Please remember that your email address is never given to anyone for
any reason, and you can unsubscribe any time you please.
If you want to unsubscribe and
are unable to unsubscribe yourself for any reason, just send me a note
personally and I'll remove you from this mailing list. One thing for
sure, if you want out, I'll make sure you are removed! My email
address appears as the 'From' address on every newsletter even though
it is sent through a list server. I encourage readers to send their
comments, suggestions, stories and opinions to me also. All
constructive criticism is applied as a method to improve this
publication.
Usually, this newsletter is
sent to subscriber's email inboxes. But time does not permit me to
send it out this time. I've opted to place it on the web only.
Lots of things are happening.
In the public realm, the healthcare budgets are getting cut
everywhere. Disability advocates and service providers are fighting to
stop the cuts.
In my personal life, several
significant changes have brought me face to face with cognitive
dissonance again. My ability to publish this newsletter might be
affected.
A friend and mentor, Chester
White, has been a strong advocate in my life. After telling him of the
serious changes in my personal life last night, he told me this: "When
going through Hell, don't stop."
I've designed this edition of
B-NEWS to motivate and inspire. This edition is a bit off the usual
path of information related only to head injury, concussion and brain
injury. I'm unsure of when I'll publish again. This note might not be
inspiring or motivating, but much of the rest of the content of this
newsletter is.
I felt that I needed to share
some positive, motivational information after watching the public
execution of a woman who had committed no crime. I thought uplifting
material was appropriate and desirable. The in-your-face, matter of
fact, deliberate dehydration of Terri Schiavo to death has had a
profound effect upon me. I needed to focus my attention on some things
that are good.
Read on my friends. And I will
keep doing what I can do to deliver the message of accessibility,
accommodation, inclusion and person-centered, functional need-based
service delivery wherever I am. Like it or not, I'm one-tracked and
non-compliant in that way.
Till next time-
John
Back to table of contents
|
"View a negative experience in your life
like you'd look at a photo negative. A single negative can create an
unlimited number of positive prints." -Gerhard Gschwandtner |
by Jim Rohn
Several years ago I went into the studio and recorded a
56-minute video for teenagers called, "Three Keys To Greatness."
Although my focus was for teenagers, the principles I shared certainly
apply to adults as well.
Recently I was asked to list these three things using one to two
sentences for each. Now for your benefit here they are again.
1) Setting Goals. I call it the view of the future. Most people,
including kids, will pay the price if they can see the promise of the
future. So we need to help our kids see a well-defined future, so they
will be motivated to pay the price today to attain the rewards of
tomorrow. Goals help them do this.
2) Personal Development. Simply making consistent investments in our
self-education and knowledge banks pays major dividends throughout our
lives. I suggest having a minimum amount of time set aside for reading
books, listening to audiocassettes, attending seminars, keeping a
journal and spending time with other successful people. Charlie
"Tremendous" Jones says you will be in five years the sum total of the
books you read and the people you are around.
3) Financial Planning. I call it the 70/30 plan. After receiving your
paycheck or paying yourself, simply setting aside 10% for saving, 10%
for investing and 10% for giving, and over time this will guarantee
financial independence for a teenager.
If a young person, or for that matter an adult, focused on doing these
three simple things over a long period of time I believe they will be
assured success!
To Your Success,
Jim Rohn
Back to table of contents
|
"There are no guarantees.
By the way, is there a chance that you could embark on a challenging
goal ... and not reach it? Absolutely. But, when you set an
ambitious objective and give it your all, you are a winner and can
hold your head high regardless of the end result." -Jeff Keller,
Attitude is Everything |
Advisory Committee to the PA Department of Welfare
John Pistorius
I've attended three meetings of the Stakeholder Planning Team (SPT) to
date. The leadership of the SPT has been openly responsive to my
requests for accommodation. I've commented about ways to improve
accessibility and the leaders have made efforts to improve the
cognitive accessibility of the meetings.
A few things can be done to further improve access to the Stakeholder
Planning Team Meetings. I'll be presenting my ideas to the leadership
in the near future.
Please remember that you are welcome and encouraged to attend meetings
of the SPT. All expenses will be paid or reimbursed for those who are
not compensated by their company to attend.
For more specific information about this advisory committee, please
visit:
http://www.bisga.org/Newsletter/2005/jan_7,_05.htm
Back to table of contents
|
The wise person in the storm prays God, not
for safety from danger, but for deliverance from fear. It is the
storm within which endangers us, not the storm without. -Ralph Waldo
Emerson |
by Dr. Denis Waitley
To conquer your fear of rejection, you need to handle the word "no" in a
constructive way. When people turn you down after a presentation, you
have to interpret the "no" as "no this is not right for me now." We also
can interpret "no" as meaning, "I need to know more about this
opportunity or the products before I can say yes."
I look at the service I offer to others as a gift that almost everyone
desires. It's like a nutritious dessert. What if waiters or waitresses
in a restaurant said to customers at their tables: "Would you like our
special strawberry parfait for dessert? It's the best in the world!" And
they were told "no" by their patrons, three out of five times.
Would they go to their manager, throw up their hands and quit,
lamenting, "They don’t like me or my strawberry parfait"? Of course they
wouldn't. They'd go on about their business, thinking the patrons had
missed out on something delicious.
That's why I treat products as a gift, much more nutritious and
beneficial than a fruit dessert. But what is being rejected is the
presentation, not the presenter. When I can separate my self-esteem from
offering the products or business opportunity, I can live with rejection
and look for ways to get a positive response more often.
When you are experiencing rejection, that's the time to network with
mentors and role models. It's also the time to listen to upbeat music
and read articles like this, to attend meetings and conference calls,
and to hang around with optimists and winners.
There are basically four things we do in selling our products and
services, and only four. We use the products and services ourselves, we
talk to people about the products and services, we talk to people about
the financial benefits we offer, and we coach them to refer us to others
who do the same thing. First, we are coachable and willing to learn
something new every day. Then, we become coaches. All you really need to
move up to the next level is have faith in yourself.
To laugh is to risk appearing the fool. To weep is to risk appearing
sentimental. To reach out for another is to risk involvement. To expose
your feelings is to risk revealing your true self. To place your ideas
and dreams before a crowd, is to risk rejection. To love is to risk not
being loved in return. To live is to risk dying. To hope is to risk
despair. To try is to risk failure. But risks must be taken because the
greatest hazard in life is to risk nothing at all. People who will risk
nothing --- do nothing, have nothing, and become nothing. They may avoid
suffering and sorrow, but they cannot learn, feel, change, grow, love or
live. Chained by their certitudes, they are slaves.
They have forfeited their freedom. Only a person who risks is truly
free.
And one last idea you can live and believe, is the more that you give
----- the more you'll receive!
Back to
table of contents
|
"You can get everything
you want when you begin to see your obstacles as your
opportunities." -Dr. Rae |
John Pistorius
On March 1, 2005, the Pennsylvania Department of Health sent out an
email notice about grant money which was available to promote
education and networking at the grass roots level focused on traumatic
brain injury. The message stated that "funds in the amount of up to
$1,360 were available for five support groups to establish or expand
existing support groups."
Upon receiving this message, I wrote to Drew Nagle, President of the
BIA of PA. I asked if Brain Injury Association of PA (BIAPA) was
willing to permit PA Support groups to access this funding via the
BIAPA Federal Tax ID number. Drew promptly replied with, "I will
forward your request to the BIAPA Executive Committee who are meeting
tomorrow, and will get back to you after the meeting."
So I immediately contacted the Grant Administrator, Becky Kishbaugh,
with the following message: "Does the Federal tax ID number need to be
a 501c.3 or can individuals running the groups use a personal tax ID?
We have many group leaders in PA that operate out of their own pockets
but have no Federal 501c.3 ID number." and "Can you give me a more
specific list of items this money can be used for? Or perhaps if the
list of prohibited items is smaller, you could send it instead."
Then I forwarded the original message to other support group leaders
with whom I am acquainted.
Ms. Kishbaugh responded immediately. She told me that we had to "spend
the money by March 31, 2005 on activities, materials, speakers, etc
that will help strengthen existing TBI support groups or create new
support groups." She also said that she was "open to any suggestions
as to how the money could be spent to accomplish this." and "The money
must go directly to benefit the group."
She also wrote: "Ineligible costs would include
administrative/indirect costs; purchases or activities mandated by the
Americans with Disabilities Act; new building construction or
structural renovation of an existing space; capital expenses or
equipment."
Then on March 3, 2005, I learned that the total amount of $3,000 could
be used by one group! So I decided to make sure that this money was
used to benefit local support groups.
Bruce Marion, a long-time volunteer had a great idea for converting
our videotape library into DVD's. But we do not have the equipment to
copy the videotapes to DVD's, and the grant could not be used to
purchase the equipment. So that idea would not be eligible for the
funding.
In my role as the founder of the Brain Injury Support Alliance, I
created a manual for developing or strengthening peer-to-peer support
groups. The manual was available through the
www.bisga.org website, but it did
not have specific information for Pennsylvania in it. After a couple
of days of emailing back and forth with Ms. Kishbaugh, I sent her a
copy and received the Ok to have this manual printed. I began editing
this document to make it specific to the Commonwealth of PA., and
began seeking a printing company that would produce the highest number
of copies for the lowest price.
By March 11, 2005, I found a printer that said they could make twice
as many as the next lowest cost printer. After finding the printer and
arranging to have the printer receive payment directly from the PA
DOH, I finished the editing and sent the document to the printer. They
sent me the proof March 17th. After making a minor change, I sent it
back to the printer. The Dept. of Health paid the printer directly and
the printer sent me a revised proof March 23rd.
The printer delivered the manuals two days before the deadline, March
29th.
While proofing the manuals, on March 18th, I learned that no other
groups had used the funding that was available. Another grant was
offered to me to be used for the Pittsburgh Area Brain Injury
Alliance. Remember that the deadline was March 31st. So we had to act
fast. I proceeded to do what I could to prepare documents for several
PABIA affiliated groups to use while finalizing the BISGA grant
process and Ten Insider Tips Manual printing. Since I already had the
tools in their generic state, I simply needed to insert the specific
contact information for each group. It took a few days of telephone
calls and email messages to get the correct contact information for
the seven groups I was working with.
Glitches
After editing the 21 projects, one group leader told me that he wanted
to change the Meeting Notice Poster templates that I sent him to proof
read. He completely revised the poster and with my help, included
tear-off tabs. Then he had them printed separately.
Then, just two days before the deadline, another group leader called
to tell me that she was no longer interested in leading the group. So
I had to remove that project from the list.
At about the same time, I received the quote for the printing of the
multiple projects. I was dissatisfied with the quantities that we
could receive. So I drove to the printer to negotiate the numbers. I
decided to have two brochures printed and five meeting notice posters
printed. Each of the meeting notice posters were personalized for each
group. One of the brochures was personalized for the Pittsburgh Area
Brain Injury Alliance and the other was not personalized. It contained
a space where each group leader could place their personal contact
information.
This strategy proved to be the most cost effective. We were able to
have 10,950 PABIA brochures printed and 10,950 of the other brochures
printed too. This was because the printer could use larger stock paper
to accommodate both brochures and run one printing press. Each group
has 200 meeting notice posters with tear off tabs containing contact
information. These projects were ordered March 31, 2005. Right on time
to beat the deadline!
The paperwork for the BISGA Support Group Training Manuals needed to
be completed and submitted and Ed Crinnion had to complete the PABIA
paperwork. So I jumped in my truck, drove to Ed's house and we filled
out his paperwork, and faxed it to Becky Kishbaugh. Then I drove a
copy of the documents to the Post Office and mailed them by 9 PM,
March 31st!
This was an exhilarating experience. There were times when I thought
I'd fail to get anything done at all. But in the end, the projects
were printed, funding secured and support groups are beginning to
receive the materials that will strengthen their position in their
communities by giving the members a way to reach others who can
benefit from peer support. And that's what really matters.
Back to
table of contents
|
An unconstitutional act is
not a law; it confers no rights; it imposes no duties; it affords no
protection; it creates no office; it is in legal contemplation, as
inoperative as though it had never been passed." Norton v. Shelby
County, 118 US 425 (1885) |
A new mini-ebook gift for
you ...
The Shocking
Truth about Action
Mr. Wattles devotes two whole
chapters of "Science Of Getting Rich" (SOGR) to the subject of
"action." And it's one of the topics I get the most questions about. So
now I've got a nifty little mini-ebook for you that answers those
questions in just a few pages.
If you've ever felt unsure
about WHAT action to take toward your clear mental image or
exactly WHEN to take action, you're going to LOVE this ebook!
What's more, inside it you'll
find something else REALLY SPECIAL just for Certain Way readers —
something I have found so helpful that I can hardly wait for you to find
out what it is and GET it for yourself!
Mac users: Click and
hold.
This ebook is an Adobe PDF file
(just like the SOGR ebook). You can also left-click to open the
ebook online, then click the little disc icon in Adobe Reader® to "Save
A Copy." If you need help with downloading or printing or need to get a
free copy of Adobe Reader®,
click here for
the Tech Help page.
Back to table
of contents
|
There are two ways of meeting difficulties.
You alter the difficulties or you alter yourself to meet them."
-Phyllis Bottome |
John Pistorius
Last year, with the help of others, I assisted in the creation of a
support group that met in the Oakland section of Pittsburgh.
Eventually, this group stopped meeting. But not before I directed
Nicole Jezowicz and her family to it. I attended a few meetings with
Nicole and her family members. The group met their needs. They were
only sorry that a similar group was not available in Erie, PA where
Nicole lives.
When Nicole expressed her concern about driving two hours into
Pittsburgh to attend the meetings, I offered to help her start a group
there. She willingly accepted the challenge and we immediately got to
work.
We met several times in Erie. Nicole found a place to meet, secured
refreshment donations and notified the press as I had instructed her.
She was not interested in taking control of this meeting and doing
things her way. Instead, she deferred to my experience and knowledge.
Nicole studied the materials that I provided and followed the example
of successful peer-to-peer support groups as illustrated in the Ten
Insider Tips training manual.
The first meeting was held April 6, 2005 in a meeting room at the
Christ United Methodist Church, 32nd St. at Zuck Road, Erie, Pa. It
was a success with ten persons in attendance. The parents there
discussed ways in which they supported their loved ones through the
recovery process. The individuals who survived TBI talked about the
importance of having support.
The attendees talked about the need for peer support in Erie, PA. One
woman, an employee of the local rehabilitation hospital was upset that
she was unable to find a support group within that facility. She
learned that a group once existed but had fizzled out. I’ve been told
recently that this facility-based group might be resurrected.
Rita Parks, a former long-time support group facilitator, commented
about whether this new group would be for parents and individuals who
experience tbi. It was agreed that this new meeting was open to all
concerned persons and the meeting place could be divided to
accommodate two distinct groups. She also raised the question about
individuals with mobility devices attending. I responded with, “It is
my opinion that all persons interested can attend.” If the need arises
to diversify and spin off different smaller groups to better
accommodate individuals, then that is what will be done.
In my experience, I've learned that several meetings can be held in
the same town. I believe this new meeting will succeed because it is
being led by a woman who is committed to leading the group. She is
willing to do what needs to be done and has shown her commitment to
following a well designed plan of action. If the need arises for
additional peer support groups, I believe Nicole will rise to the
challenge and encourage their development.
The next meeting is scheduled for March 4, 2005. Anyone interested in
attending can contact Nicole Jezowicz at (814) 835-3082 or email:
NIKDSULLY@aol.com. Everyone is
welcome and encouraged to attend.
(Editor's note: Please remember that anyone interested in starting a
peer-to-peer support group can contact me at jp@pabia.org or (412)
481-0443 to receive free assistance and tools to get a group started
in their area.)
Back to
table of contents
|
"In Britain, more babies
with Down syndrome are aborted than are allowed to be born. In
America, more than 80 percent of the babies diagnosed prenatally
with Down syndrome are aborted. This is dismaying to, among others,
the American Association of People with Disabilities, whose premise
is that "disability is a natural part of the human experience.""
-George F. Will,
washingtonpost.com, Thursday, April 14, 2005; Page A27 |
by John Pistorius
I met a family a couple of weeks ago who told a story that I'll share.
In my opinion, it uncovers one of the very real motivations behind
killing people with disability labels.
The mother tells how her 22 yr old son was in an auto accident. He
sustained a brain injury and was taken to the hospital. The family was
told by the professionals that he was in an irreversible state and was
expected to die. They were asked to give permission for organ
harvesting. They refused to give up on him.
The mother’s eyes fill with tears as she tells the story. She explains
that while she was praying with others for her son, another mother was
there for her own son. They offered to pray with the woman for her son.
But the other woman refused. The mother told me that she learned later
that the other woman's son was waiting for a heart transplant. The
hospital was trying to get this mother to let them harvest her son's
organs while promising the other mother a "new" heart for her boy.
I realize that this is an isolated incident. It is probably a unique
situation. But it points to a problem that is rarely, if ever, looked
at. Human body parts have become a commodity. One person has to die in
order for another to receive a part they need to continue to live or
function. And sometimes doctors practice deciding who lives and who
dies.
Even without the above information, the mother whose son sustained the
brain injury stayed firm in her resolve to keep her son alive. She
refused to part him out. He survived that night and many more since.
However, the mother told me that when he was in the hospital that
"somehow he was going to fall out of bed" while she was not there. The
medical company employee, who stopped the fall, grabbed the shunt and
feeding tube to pull him back to the bed, thereby ripping these devices
out and causing additional injuries. (Appalling?)
Because of the unofficial shunt removal and damage, docs decided to
drain fluids via spinal taps. On one such occasion, again when the
family was out of the room, instead of draining 10 cc of fluid, the
nurse forgot to check and 60 cc's were drained. This was equal to
sucking his brain dry. The mother tells me that his brain stem was
injured by this negligent act. She tells how he was violently shaking
and his eyes were completely bloodshot when she returned. And how the
so-called professional casually apologized because she forgot to check
on him! (Angering?)
He is now receiving therapy in a rehabilitation facility. But the
insurance company representative has told the family that they are not
willing to spend any more money on him. This insurance company employee
stated that he was concerned that he could lose his job. The mother has
fought successfully to have the son's therapies continue. But how many
mothers lose? Will you win for your loved one?
This story brought some things together for me. I know that many
individuals are pushing euthanasia for a lot of reasons. I believe the
insurance industry is pushing this for their reasons too. Perhaps the
human body parts doctors are pushing this also. I know that money is the
motivating factor behind euthanasia. It’s about BIG money.
Euthanasia Wants You
Each and every citizen of United States of America is eligible for
euthanasia. I've met countless numbers of people who would be food for
worms right now if not for the efforts of caring parents or spouses and
funding for services.
Citizens of other countries were looking to us to set a positive example
in favor of life regarding Terri Schiavo. We let them down. Not only
have we failed this one woman, but we have failed millions of human
beings all over the world. In third-world nations where human life is
considered cheap, we have affirmed their stance. We have proven to the
world that the citizens of these great United States of America do not
value human life. Not truly.
Brain injury does not discriminate. It comes without warning in most
cases like a thief in the night. Usually with little or no notice, it
robs productive people of their ability to defend themselves from others
who perpetrate all sorts of crimes. No one is immune. Not even YOU. And
now death has been sanctioned as a response to brain injury. Terri
Schiavo was not terminally ill. Her murder was not performed secretly.
It was done in the public square with all cameras focused on the event.
It was broadcast all over the world. You cannot say that you were not
warned.
Maybe you are one of the people that I've heard say "I wouldn't want to
live like that." or "Who would want to live like that?" or "Those people
cost a lot of money to keep alive." or any number of other derogatory
statements and comments.
One person wrote to me, a pastor, who told me that removing the feeding
tube was only permitting nature to take its course. I didn't disagree.
Anyone could simulate the inability to speak by having a rag stuffed in
their mouth. They could have their hands tied and stop themselves from
consuming any food or water. Nature will take its course with them too.
Death will be as excruciating and drawn out for them as it was for Terri
Schiavo. And with or without disability, death will probably not take
any longer to come to them than it did for her.
I have faith in the goodness of this nation. It is indeed the greatest
place on earth. Yet our country is sick. The sickness is not being
treated. It is a moral disease that causes people to be divided. On both
sides of the line, we have hypocrites. On both sides we have agitators
who further the divide. If human life is not sacred, then nothing is.
Automobile Lesson
Everyone in modern society lives at the mercy of motorized
transportation systems. Even the persons who are homeless eat food that
has been transported by petrol-fuel based transportation systems.
The personal automobile machines that we use are designed to move us
from one place and point in time to another place, forward in time. They
offer some degree of comfort, style and usability. However, their useful
life has functional limits. These limits can be influenced by many
factors.
When an automobile has reached the end of its useful life, we have
recycling centers that process these machines. Some people call them
junkyards. The operators of these recycling yards are keenly aware of
the value that remains in a “used-up” or “broken-down” personal
transportation machine. And they are adept at extracting the remaining
value from these machines.
One of the ways in which this remaining value is harvested from our
discarded automobiles is by disassembling them and selling off the
useable parts. A certain demand exists for many parts because
manufacturers sometimes use identically designed mechanical parts for
many years. These parts are interchangeable between many models and many
years of manufacture. Of course everyone knows that the color of the
paint used on these machines does not affect the usability of the parts
from that machine. Therefore, every personal transportation machine that
ends up in the hands of the professional auto dismantlers and recyclers
can be converted into money for these pros. These dismantlers remove
parts from discarded units and sell them to others to repair other
vehicles. This can be a very lucrative business, especially when
legislation is enacted to stiffen the rules governing safety, emissions
and usability of the machines.
Laws insure the addition of newer models to the recycling yards’
storehouse of parts by making it cost prohibitive to maintain the
damaged vehicles. Those that can be dismantled are looked at as parts
and profit. The others are looked at as disposable, crushed, and melted
down to be used as feed stock for new materials in the manufacturing
process. And this fills the recyclers’ pockets with lots of loot!
There is another side to this automobile recycling business. It is one
of profound greed. Autos that could continue to function are routinely
dismantled because they are more valuable to the dismantlers that way.
Some auto mechanics are tied to the recyclers. They feed customers to
their affiliates. This type of collaboration terminates the life of
countless machines every year.
On the dark side of this business, some recyclers accept perfectly good
autos from unscrupulous suppliers who bring perfectly functional units
to them. Many of these units are stolen. Some are made to disappear by
insurance fraud. Others are deliberately disabled by the mechanics who
are tied to the professional dismantlers.
Profiteering on Humans
Once upon a time, judges and legislators were united on slavery in this
country. Human beings were labeled as non-human by external criteria.
Those in power used specific terminology to devalue human life and to
use humans to benefit and profit their selves. Based on external
criteria that had nothing to do with intrinsic value, humans were
routinely killed, maimed and enslaved by others who were able to reap
huge profits by disempowering this group of people. However, we overcame
this type of human abuse with enlightened language choices and a
determination to end the inhumane treatment of human beings.
I believe the persons who were most affected by slavery were those who
had been enslaved all of their lives. They just couldn't see a way out.
They were disabled by their inability to even imagine freedom. But
scores of people were able to see a way out and they were able to fight
for freedom.
I also believe many of the people with disabilities caused by brain
injury are like the slaves who had lived disempowered lives. They cannot
envision freedom. They are bound by invisible chains. Some of these
bindings are only in their minds. Others are a part of the way they are
excluded from participating in life.
They are chained to an inaccessible world that denies their humanity.
They are shackled to undignified treatment that is promoted and sold as
dignity. Few are able to speak out about the abuse they are subjected
to. Many are unable to fight because of the nature of their
disabilities. These facts make them vulnerable in ways that slaves could
never have imagined.
In this new model of slavery, the wealthy “plantation owners” have lost
their original profit motive. The paradigm is shifting. The
disempowerment of human beings being perpetrated upon those who have
functional limitations has just reached a new low with the
well-publicized lynching of Terri Schiavo. People with disabilities are
fair game for all manner of discrimination. The open murder of Terri
proves it. They might as well have wrapped a rope around her neck and
tossed her over the side of a bridge.
Profiting from the delivery of minimized services and
institutionalization and incarceration of individuals with disabilities
has long been fought by persons who themselves experienced impairments
that were labeled disabilities. But how can a dead girl fight back? How
can the millions of people who live with impairments that are classified
as disabilities fight the recycler’s mentality? In our image conscious
society, many persons with disability labels are perceived to be
junkyard material. Those that can be dismantled are looked at as parts
and profit. The others are looked at as disposable. After all, we do
live in an overpopulated world where natural resources are endangered.
We live in a society that has grown up on disposable products that are
made to be consumed. We have objectified human beings. As objects,
humans only have value insomuch as they can serve us in some capacity.
Once we label people "disabled" or when they no longer serve our
purposes, we want to dispose of them like yesterday's newspaper.
While persons with disabilities fought for freedom from oppressive,
inaccessible systems and services to be accommodated into mainstream
society, the new “plantation owners” were fighting for the money.
Persons with disabilities are expendable because in the eyes of these
plantation owners, they are chattel. And they have become a liability
instead of an asset. What better way to raise the bottom line of
companies than by cutting liabilities and improving access to profitable
materials? It makes good business sense.
Die Hard
You might be cut next. One bump on the head and you can get demoted from
human to vegetable status. Maybe you think you wouldn't want to live
like that. But think about whether you want to die like that. Just for
kicks, go one day without food and water to get a feel for it. If you
can get through one day, push for two. Dehydrate yourself and feel how
"natural" death would feel under those circumstances. Then, those who
told me that this was "letting nature take its course" and those of you
who said that this was the "best thing" for Terri Schiavo can tell me
how natural it feels. But I doubt it because when it comes down to it,
no one would ever ask to be murdered the way that Terri Schiavo was.
My hope is that parents, siblings and spouses fight for the lives of
their loved ones to keep them from being made dead. If not, God help us.
Back to table
of contents
|
Alternate Medical Definitions
Secretion.............Hiding something |

Motivational
Tip For The Day
by Jan Tincher
In his book, *The
Science Of Getting Rich,* Wallace D. Wattles says, *You cannot retain
a true and clear vision of wealth if you are constantly turning your
attention to opposing pictures, either external or Imaginary.*
Are you constantly thinking of, or telling others, about your past
financial troubles?
Stop it.
Do you talk about your overdue bills to others?
Stop it.
Do you talk about how your gas bills are so high, you can't afford
them?
Stop it.
Do you talk about how the interest rate on your charge cards are
killing you?
Stop it.
I am not saying the problems will go away, I am saying that if you
make a conscious effort to focus on the good in life, the good will
come to you. If you focus on your problems, it won't.
It's that simple. What are YOU focusing on or thinking about?
-----
Be a success! Let Jan Tincher, Master Neuro-Linguistic
Programmer, help you! Great articles, great strategies you can
implement immediately! Go here now:
http://www.tameyourbrain.com/success/index1.htm
Back to table of contents
|
Change is not made without inconvenience,
even from worse to better. - Richard Hooker |
*
The Eyes of Truth (Song
Lyrics)
By ENIGMA
If you understand or if you
don't
If you believe or if you doubt
There's a universal justice
And the eyes of truth
Are always watching you.
Back to table of contents
|
"Kind words can be short and easy to speak,
but their echoes are truly endless." - Mother Teresa |
Like Medicaid, SSI also is in serious jeopardy in
the budget bill conference negotiations. A paper explaining the issue
is now posted on the Consortium for Citizens with Disabilities website
at:
http://www.c-c-d.org/SSI%20Threat4c.pdf.
(Editor's note: The Consortium
for Citizens with Disabilities is a coalition of approximately 100
national disability organizations working together to advocate for
national public policy that ensures the self determination,
independence, empowerment, integration and inclusion of children and
adults with disabilities in all aspects of society.)
Back to table of contents
|
Where rights secured by the Federal
Constitution are involved, there can be no rule-making or
legislation which would abrogate them." Miranda v. Arizona, 384 US
436 (1966) |
Is your microwave oven a mess? Well, here is an
easy method of cleaning it.
Put two tablespoons of lemon juice in a cup of
water. Microwave this mixture of lemon juice and water in a
microwave-safe bowl for about 7 minutes.
Allow the heated mixture to cool. Check to make
sure it is cool enough to touch. After carefully removing the bowl, wipe
the microwave down with a soft cloth. It's that easy. Repeat as often as
necessary.
Back to table of contents
|
"If you fail to direct
your subconscious mind, it produces under a law of averages, and you
are a nice, ineffective, sweet person." -Raymond Charles Barker |
Mail Bag
Dear John,
Thank you for your newsletter and above all, for your caring. I live
in Zimbabwe - a country afflicted by political and often violent
disruptions. It is not an easy place to live in. But, euthanasia is a
crime here and that is the only reason my son, Steve, remains alive to
this day following a lightning strike to his head in 1997. Steve's
case is very similar to the Schiavo case and what is happening in the
United States of America to Terri is being closely followed in
Zimbabwe by Steve's wife (who has also 'got on with her life' and
lives with another man). Surreptitious activities have taken place to
end my son's life - ranging from acute starvation, to leaving fissured
catheters in place and causing extreme agony. On one occasion a
surgical procedure (digging into bedsores with a scalpel) was carried
out without any form of pain killer being applied and one can only
imagine the suffering.
Steve cannot speak, or move. He has less than an hour's therapy once a
week, which is of little if any benefit. He was even pushed off the
bed (albeit accidentally) and no x-rays acquired for three days until
I discovered from facial grimaces, and hand squeezing what had
occurred. Even then, they refused to x-ray his whole body, only those
areas where I could see deep bruising. I was told by the person in
charge of the hospital that he would be better off dead - and he was
withdrawn from all medication.
The reason I am writing this to you - is not about Steve specifically
- but to alert the people in the United States of America that your
country is the 'role model' for the third world and what is being done
there will be considered 'civilised' in Africa. I am fighting for my
son's life with the same determination and desperation of Terri's
parents - and I will lose that fight, if Terri's life is taken
'legally?' away from her, for definitely the decision to end Terri's
life by the courts and the medical system in the USA, will be the
'starter's gun' for mass execution of helpless patients in a continent
where human life is cheap and AIDS and other diseases are already
taking a terrible toll.
Please don't let America make this a precedent. Fight on against this
terrible murder mentality for the sake of people around the world, who
look to the USA for guidance and compassion. If they kill Terri, then
they will kill my son also.
Susan.
Harare Zimbabwe
Back to table of contents
*
"IT IS MURDER IF THIS
WOMAN MUST DIE"
(Article in Beeld/Pretoria on
24/3/2005/Philip de Bruin)
Translated by Elna Rudman
"It is murder. God help the sorry society
where she lives!" Mrs. Elna Rudman of Wingate Park, Pretoria talks
candidly over the fight in America over the so called brain dead Mrs.
Terri Schiavo of Florida.
Rudman is entitled to an opinion. Her son, Roald, was as a 2 year old
declared brain dead by a police officer on 6 October 1997 after
falling into the family's swimming pool. Now she is as the founder of
and unofficial leader of the only support group in South Africa for
parents with children that suffered severe brain damage. She is also a
member of overseas organisations: Parents of Near drowns, Neurotherapy
Group & Traumatic Brain Injury Group on a warpath.
She fought as one woman alone
from South Africa for Terri Schiavo's life. She already contacted
every senator possible who she could obtain details for, via e-mail to
help the fight for Terri's life. Yesterday she also send an e-mail to
CNN. In this e-mail Rudman says she is "highly upset that the
American public support a man (Schiavo's husband) that is a murderer
in my opinion." Mr. Schiavo wants to stop all medical treatment to
his wife but her parents asks for her to live en that they will take
care of her. "Is Mr. Schiavo now all of a sudden God? Why does he
not divorce her and let her parents take care of her? She is a
self-breathing living human being," says Rudman in a e-mail to CNN.
Yesterday she told Beeld : "Terri laughs, she smiles. She is not in a
coma or connected to a respirator. She does what my child does - says
a word here and there. How on earth can they say she is vegetative or
brain dead?" "It is easy for people outside of the situation to say :
Let her die. It is totally a different story if you live a brain
injury 24/7, like us with Roald.
Terri reacts just like Roald and if I think of the love and dedication
that we have looked after Roald for the last seven years, I am
appalled that such a thing (as is happening with Terri) could happen
to my son." Roald, now 10 years old, is today "his mothers angel that
only gives her pleasure on a daily basis."
e-mail address of correspondent :
pdebruin@beeld.com
(I translated from Afrikaans
to the best of my ability!!!!!)
Elna Rudman
Pretoria/South Africa
elnar@netactive.co.za
(Editors note: I was
privileged to introduce Elna (from Pretoria) to Sheila (from Cape
Town) after meeting them independently through email. They have since
joined together to form the only peer support group in South Africa
for parents of children who survive near drowning accidents.)
Back to table of contents
|
"Those who won our
independence believed that the final end of the State was to make
men free to develop their faculties; and that in its government the
deliberate forces should prevail over the arbitrary. They valued
liberty both as an end and as a means. They believed liberty to be
the secret of happiness and courage to be the secret of liberty.
They believed that freedom to think as you will and to speak as you
think are means indispensable to the discovery and spread of
political truth; that without free speech and assembly discussion
would be futile; that with them, discussion affords ordinarily
adequate protection against the dissemination of noxious doctrine;
that the greatest menace to freedom is an inert people; that public
discussion is a political duty; and that this should be a
fundamental principle of American government...they knew that order
cannot be secured merely through fear of punishment for its
infraction; that it is hazardous to discourage thought, hope and
imagination; that fear breeds repression; that repression breeds
hate; that hate menaces stable government; that the path of safety
lies in the opportunity to discuss freely supposed grievances and
proposed remedies; and that the fitting remedy for evil counsels is
good ones." - Justice Louis Brandeis, Whitney v. California, 274 US
at 375 |
Free Help for
anyone Starting or Running Peer Groups
The
Ten Insider Tips manual is ready for release. Anyone interested in
receiving a copy of the manual and tools can visit
http://www.bisga.org/tools.html or write to John Pistorius at
jp@pabia.org or call (412) 481-0443 to
receive a free CD with the support group tools created so far.
Back to table of contents
|
"It is not how much we do, but how much love
we put in the doing. It is not how much we give, but how much love
we put in the giving." -Mother Teresa |
Please visit
http://www.pabia.org for a complete
listing of Pittsburgh Area Peer Support group meetings. Please mark
your 2005 calendar for each month in advance as an ongoing reminder.
We do not have any
control over the people who are responsible for directing these
meetings. Therefore, if you are interested in attending any of the
meetings, please contact the person listed for that meeting to confirm
the date, meeting place and time.
For more complete information please visit the directory of meetings
at
http://www.pabia.org/Support%20Groups/Support%20Groups.htm
For a list of State Brain
Injury Associations and the groups in those states, please visit:
http://www.biausa.org/Pages/state_contacts.html
We have two email support
groups you can join. One is through Denise Patterson. Contact Denise
at
deenomad@aol.com to be added.
The other is through
Yahoo Groups. You can join at
http://health.groups.yahoo.com/group/Brainstormers101/
Back to
table of contents
|
A man can fail many times, but he isn't a
failure until he begins to blame somebody else." - John Burroughs |
B-NEWS Contributors-
your insight, articles, poems and comments are vital to the success of
this publication.
B-NEWS
Subscribers-
Without you, I'd have no reason to publish.
Back to table of contents
|
'When the morning's freshness
has been replaced by the weariness of midday, when the leg muscles
give under the strain, the climb seems endless, and suddenly nothing
will go quite as you wish-it is then that you must not hesitate.' -
Dag Hammarskjold |
We aim to
inform, inspire and empower people to be their best. We value every
subscriber and respect your privacy. Our subscriber list is NOT made
available to anyone for any reason. We do not sell, rent or lend our
mailing list. If you find this newsletter to be of value, we invite
and encourage you to forward it (in its entirety, please) to your
friends. Sometimes people choose to stop receiving "B-News". You may
unsubscribe at any time by following the instructions provided at the
end of this message. We don’t want to send this to anyone who doesn’t
wish to receive it, and we will make every good faith effort to remove
you if you notify us of your intent to be removed.
Back to table of contents
|
“I believe that imagination is
stronger than knowledge, that myth is more potent than history, that
dreams are more powerful than facts, that hope always triumphs over
experience, that laughter is the only cure for grief, and I believe
that love is stronger than death”. -Robert Fulghum |
*
Subscribe/Unsubscribe
Instructions
Visit:
http://www.bisga.org/ and click on the subscribe/unsubscribe link
and follow the simple procedure on our list server's form to add or
remove yourself.
or
To Subscribe-
Send a blank email to:
B-NEWS-SUBSCRIBE-REQUEST@LISTSERV.TBINET.ORG (your Subject: line may
say JOIN)
To Unsubscribe-
send a blank email to
B-NEWS-SIGNOFF-REQUEST@LISTSERV.TBINET.ORG (your Subject: line may
say REMOVE)
Back
to table of contents
|
"Don't wish it was easier; wish you were
better. Don't wish for less problems; wish for more skills. Don't
wish for less challenges; wish for more wisdom." Jim Rohn |

Till next
time, Seek to be and remain Barrier-Free. You have the power.
|
'The only competition you will ever have is
the competition between your disciplined and undisciplined mind.' -
James A. Ray |
Thank you for subscribing and
reading this newsletter. It is yours. This newsletter may contain
articles, news releases and other items of interest supplied by or
received from third parties.
Required Disclaimer:
Nothing contained herein is intended to be substituted for medical,
legal, accounting or other professional advice. The information provided
herein should not be taken as a health-care diagnosis, treatment, course
of therapy or as any other approved or prescribed health-care advice or
instruction. The information is provided with the understanding that the
publisher is not engaged in the practice of medicine or any other
health-care, legal, accounting or other profession and does not enter
into a health-care, legal, accounting or other professional
practitioner/patient/client relationship with its readers. The publisher
does not advise or recommend to its readers treatment or action with
regard to matters relating to their health, legal, accounting or other
professional needs or well-being other than to suggest that readers
consult appropriate professionals in such matters. The publisher does
not recommend or suggest that action should be taken based solely on the
content of this publication. The limited information and opinions
provided herein are believed to be accurate and sound at the time of
publication, based on the best judgment available to the authors.
However, readers who rely on information in this publication to replace
the advice of health-care, legal, accounting or other professionals, or
who fail to consult with health-care, legal, accounting or other
professionals, assume all risks of such conduct. The publisher is not
responsible for errors or omissions.
The contents of this E-zine may be copied, reproduced,
or freely distributed wholly or in part for all nonprofit purposes
without the consent of the author/editor as long as the following
copyright notice and contact information are included.
Compilation Copyright © 2005 John Pistorius
jp@pabia.org . Permission granted to
freely copy, use and distribute for non-profit purposes only.
Back to table
of contents
|
Thomas Edison said: "If we all did the things
we are capable of doing, we would literally astound ourselves." |
|
|
It recently occurred to me that Love is action that improves another
person's life. Not just words, but action. Doing something, anything,
that positively impacts other people's lives and leaves them even just a
little bit better off physically, emotionally, psychologically or
spiritually, that's love. -John Pistorius
Do something to leave someone a little better
off today.
The Beauty of Love:
The question is asked, "Is there anything more beautiful in life than a
young couple clasping hands
and pure hearts in the path of marriage? Can there be anything more
beautiful than young love?"
And the answer is given. "Yes, there is a more beautiful thing. It is
the spectacle of an old man and an old woman finishing their journey
together on that path. Their hands are gnarled, but still clasped;
their faces are seamed, but still radiant; their hearts are physically
bowed and tired, but still strong with love and devotion for one
another. Yes, there is a more beautiful thing than young love. Old
love." -Unknown Author
|
|